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Sharon McClellan Thomason
Jun 3, 20196 min read
Guidelines for Genetic Testing Aren’t Working
As anyone with any knowledge or affiliation with Huntington’s disease knows, predictive testing to determine if one has the genetic...
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Sharon McClellan Thomason
Jun 3, 20195 min read
New Genetic Test Offers Hope
Folks in the Huntington’s disease community are quite accustomed to the bad news that a genetic test can bring; now there’s a genetic...
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Sharon McClellan Thomason
Jun 3, 20193 min read
Through the Eyes of an 11-year-old Child Living at Risk
It seems like I’m the only one in my life that lives with my grandmother and grandfather. They are great and all, probably better than...
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Sharon McClellan Thomason
Jun 3, 201911 min read
Sacramento Symposium Brings Hope
“The symposium in Sacramento was the best HD [Huntington’s disease] gathering we have ever attended,” Bob Lohse wrote for his wife, Gail,...
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Sharon McClellan Thomason
Jun 3, 20195 min read
Why Mental Illnesses Should Be Treated as Seriously as Physical Illnesses
A day in the life of someone who suffers from Huntington’s disease: July 22, 2016 My first trip to the emergency room for anxiety. *Alarm...
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Sharon McClellan Thomason
Jun 3, 20194 min read
A Question of Life and Death
Should people who are suffering from terminal illnesses be allowed to choose “death with dignity”? Should families of loved ones who are...
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Sharon McClellan Thomason
Jun 3, 20194 min read
HD Youth: We Are the Future
They say there’s a reason for everything. So there must be a reason my life is affected by Huntington’s disease. And that is the reason...
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Sharon McClellan Thomason
Jun 3, 20197 min read
The Patient Advocate: Celebrating the Season of Giving
I would like to begin this article with some of my favorite quotes about being a patient advocate: “Advocacy: To change ‘what is’ to...
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Sharon McClellan Thomason
Jun 3, 20193 min read
She Will Dance
One of my best friends bravely decided to get tested this year, and she ended up testing positive. After she shared the news with me, I...
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Sharon McClellan Thomason
Jun 3, 20197 min read
“Look Up”: A Short Story by Brent J. Walker
Foreword Brent Walker, from Seattle, Washington, approached me about three months ago about a short story he’d written. I asked him to...
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Sharon McClellan Thomason
Jun 3, 20199 min read
“Look Up”: Part Two, a Short Story by Brent J. Walker
When you ask most women what their dream man is, they say something like this: “I want a guy who is tall, dark, handsome, and romantic....
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Sharon McClellan Thomason
Jun 3, 201916 min read
“Look Up,” Part Three: A Short Story by Brent J. Walker
Would you look at that? This machine I’ve been playing has one of them old school levers on the side. You know, the ones that are the...
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Sharon McClellan Thomason
Jun 3, 201913 min read
“Look Up,” Conclusion: A Short Story by Brent J. Walker
Whoops! That was one of my what I like to call “knee-jerk reaction” thoughts. Depression is a bitch that way. I know all women aren’t...
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Sharon McClellan Thomason
Jun 3, 20192 min read
FDA Writes Back
Voices from all across the United States are being heard by the Food and Drug Administration (FDA) in Silver Spring, Maryland. Help 4 HD...
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Sharon McClellan Thomason
Jun 3, 20193 min read
Two Shadows
Two shadows live in this house. One is male, 6-feet tall with a husky build, 31 years old. The other is female, 5’7” tall with a slim...
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Sharon McClellan Thomason
Jun 3, 20195 min read
First HIPE Day Answers Questions from Huntington’s Disease Community
Have you ever wanted to sit down and just talk to a healthcare professional who is actually knowledgeable about Huntington’s and Juvenile...
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Sharon McClellan Thomason
Jun 3, 20197 min read
The Grief of Huntington’s Disease
This is the first article in a four-part series. Traditional teachings of the Western culture say that there are five stages of grief...
236 views0 comments
Sharon McClellan Thomason
Jun 3, 20195 min read
The Grief of Huntington’s Disease, Part 2
Grief is not a one-size-fits-all tidy little package that fits neatly into a box to be stored away. Not everyone grieves in the same way...
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Sharon McClellan Thomason
Jun 3, 20198 min read
The Grief of Huntington’s Disease, Part 3
Grief is not limited to caregivers, and it can sometimes result in rifts among families who should be coming together instead of being...
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Sharon McClellan Thomason
Jun 3, 20197 min read
The Grief of Huntington’s Disease, Conclusion
How does one even begin to cope with the depths of such all-encompassing grief? Recover-from-Grief.com suggests that first, you must give...
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