Sharon McClellan Thomason
Finding a New Normal
“December 15th will be two years since we lost Cory,” says Stacey Sargent, who lost her son to JHD when he was 21. “Every holiday and...
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Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Gifting and HD
It started with a post on Facebook. Ashley Yerby wrote, “My mom has HD and has been in the nursing home for a little over a year. She is...
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Sharon McClellan Thomason
- Jun 3, 2019
- 3 min
Ray Glasser: Huntington’s Warrior
Sue Gamble is the caregiver for her brother, Ray Glasser. He has been in Lakeland Skilled Nursing and Rehabilitation Center in Angola,...
6 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 4 min
Bioethics in Huntington’s Disease Treatments and Therapies
Katie Jackson is a strong advocate for the Huntington’s and Juvenile Huntington’s disease community and is president/CEO of Help 4 HD...
15 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 2 min
Survivor’s Guilt With Huntington’s Disease
When it comes to Huntington’s and Juvenile Huntington’s disease, guilt can play a huge factor in the lives of those who test negative and...
325 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 4 min
Choosing Death with Dignity in Huntington’s Disease
Alan Pfeffer is a retired attorney in New York state whose first wife died from Huntington’s disease (H📷D) and whose 37-year-old...
502 views1 comment
Sharon McClellan Thomason
- Jun 3, 2019
- 2 min
Huntington’s Disease: All About the Kids
Talking to kids about HD can be one of the toughest parts of the Huntington’s disease journey. It’s one thing to explain that Mom or Dad...
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Sharon McClellan Thomason
- Jun 3, 2019
- 3 min
Stepping Away to Step Up When Huntington’s Disease Is Too Much
Often, I hear the pleas of caregivers saying, “I feel overwhelmed.” “My HD loved one does not qualify.” “I hate my life.” “I want...
234 views1 comment
Sharon McClellan Thomason
- Jun 3, 2019
- 3 min
Help 4 HD Announces Huntington’s Disease Awareness Month Programs
“We are excited this year about our programs we will be launching in the month of May for HD 📷Awareness Month,” says Katie Jackson,...
38 views2 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 7 min
Gastrointestinal Symptoms in Huntington’s Disease
Let’s talk about one of the “untalked about” symptoms of Huntington’s disease: gastrointestinal (GI) issues. According to Dr. LaVonne...
2,256 views1 comment
Sharon McClellan Thomason
- Jun 3, 2019
- 2 min
Huntington’s Awareness Month, Here We Come!
May is the month that inspired my caregiver’s book, I Fight for Understanding. May is Huntington’s Awareness month!! As a way to give...
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Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Navigating Juvenile Huntington’s Disease
“Sometimes superheroes reside in the hearts of small children fighting big battles.” – Author Unknown Any parents who have or had a child...
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Sharon McClellan Thomason
- Jun 3, 2019
- 8 min
Placing a Loved One with Huntington’s Disease
My Story In January of 2009, I started caring for my mom in my home, after years of her being homeless, ill, unreachable and 3,000 miles...
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Sharon McClellan Thomason
- Jun 3, 2019
- 8 min
Hypersexuality and Huntington’s Disease
Of the troubling behavioral changes that occur with the onset of Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD), and...
3,896 views4 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Huntington’s Disease: Filing for Disability
Filing for disability and navigating the system of SSDI, SSI, Medicare, and Medicaid can be both challenging and frustrating. It’s a...
42 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 6 min
I Never Thought It Would Get Better, Either
So, this is hard for me to write about. Like really, really hard. My fingers literally try to curl up every time I go to hit a letter on...
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Sharon McClellan Thomason
- Jun 3, 2019
- 2 min
For People With HD/JHD & Their Caregivers
Figuring out what to get someone who has Huntington’s disease can become more and more difficult as the disease progresses. As promised,...
5 views0 comments
Sharon McClellan Thomason
- May 29, 2019
- 1 min
You Pay the Higher Cost
Caregivers of people with Huntington’s disease often feel lonely, even when they’re with their loved ones. Sharon Quigley uses poetry to...
8 views0 comments
Sharon McClellan Thomason
- May 28, 2019
- 2 min
Surviving the Holidays
Surviving the Holidays 📷 by Lauren Holder Happy holidays! ‘Tis the season to be stressed. At least that’s how it feels for me, so I...
11 views0 comments
Sharon McClellan Thomason
- May 28, 2019
- 2 min
Holiday Gift Ideas
For People With HD/JHD & Their Caregivers By Lauren Holder Figuring out what to get someone who has Huntington’s disease can become more...
120 views0 comments
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