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RESOURCES

Resources Database

The Help 4 HD Resource Database is a collection of information to assist those impacted by Huntington's disease.

Who is Help 4 HD?

Safe Proofing Your House

Life Interrupted

Life Interrupted: Living the unimaginable, Huntington's disease patients and caregivers share their truth of strength, courage, and perseverance as ... called the worst disease known to mankind. To Purchase Life Interrupted, please click the learn more button below.

I Fight for Understanding

31 Days of Coping With Huntington's Disease-Part of Help 4 HD International’s “I Fight for . . .” campaign for HD/JHD Awareness Month, May 2017, this book began as a series of tips on a Facebook page for caregivers of people with Huntington’s disease and Juvenile Huntington’s disease . The roller coaster is a metaphor not just for the ups and downs of living with HD/JHD, but also for the breakneck speed and unpredictability with which changes often occur. Just when you’re riding along smoothly, things begin to build up, and just when they reach their peak, you plunge with your loved one into the abyss that always seems to be waiting just over the top. But it doesn’t end there. Everything levels out again, and you rock along, only to hit the rise, peak, and plunge once again. Over and over, you ride the roller coaster with your loved one who has HD/JHD, and every time, it can be just as scary and unpredictable as it was at the beginning of the ride because, you see, you never know what’s coming around that blind corner! The journey can last anywhere from 10 to 25 years, and the only thing for sure is it’s one hell of a ride! The tips within, written by a nurse who has been a caregiver for her mother-in-law, ex-husband, and two sons with HD, are meant to help caregivers navigate their way through this journey. Help 4 HD International Inc. is a grassroots, nonprofit 501 (c)(3) organization whose mission is to educate the world about Huntington’s and Juvenile Huntington’s disease. To purchase "I Fight for Understanding" please click the learn more button

What is Huntington’s Disease?

HD Awareness for Law Enforcement

Clinical Trial Brochure

Life Interrupted, Volume 2

Life Interrupted, Volume 2: Living the unimaginable horror of what has been called the worst disease known to mankind, Huntington's patients and caregivers tell their stories. To Purchase Life Interrupted, Volume 2, please click the button below 

JHD Brochure

EMT Training Program

FDA Form Letter

Living with Huntington's Disease: What I've Learned as a Caregiver

Huntington's disease (HD) has been called "the worst disease known to mankind." HD is a genetic, neurodegenerative disease that causes motor, psychiatric, and cognitive symptoms. Since there is currently no treatment or cure, the best you can hope for is to manage the symptoms with available medications. Huntington's disease is ALWAYS fatal. So what happens when your child, the person you love most in this world, is diagnosed with this monster? The author shares her experiences and what she's learned along the way, including how to advocate for your loved one and the grief and resilience that go hand-in-hand with living with HD. To purchaser "Living with Huntington's Disease" please click the button below


Publications
COMPANY INFORMATION

Help 4 HD Annual Report 2023

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2023 Help 4 HD At-A-Glance

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Help 4 HD Annual Report 2019

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Help 4 HD International Board of Directors

Help 4 HD International began its mission to educate the world about Huntington’s disease in May 2010 when founder Melissa Biliardi organized the first symposium and CME in Santa Maria, California.

Help 4 HD Annual Report 2016

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2015 990

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Help 4 HD Video’s

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2022 990

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2021 990

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2019 990

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IRS Tax Exempt Letter

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Help 4 HD Annual Report 2017

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2016 990

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2023 FDA Patient Listening Session - JoHD

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2020 990

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2018 990

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Help 4 HD Annual Report 2015

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Articles of Incorporation

Help 4 HD's Articles of Incorporation

2017 990

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