Community Conversation - Do you feel like hospice is a service that is helpful for HD/JHD families?
Community responses: 1. I feel like Hospice should be the very last option at the very end of life. In our poor county, the only benefit...
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katrina4384
- Sep 20
- 4 min
GENERATION HD2, a new Phase II clinical study
September 18th, 2022 Dear Huntington’s patient community leaders, Following your request to receive timely updates about our Huntington’s...
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katrina4384
- Sep 20
- 9 min
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial with Initial Results Indicating Allele-Selective Target...
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katrina4384
- Sep 16
- 1 min
I miss the relationship my husband and I used to have. Will it ever come back?
https://youtu.be/tP82slYQCEU
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katrina4384
- Sep 14
- 5 min
20 Questions with Help 4 HD - Lauren Holder
1. What is your name? Lauren Holder 2. How old are you? 36 3. At what age were you tested for HD? 20 4. What is the hardest thing for you...
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katrina4384
- Sep 7
- 3 min
Community Conversation -
1. "The most frustrating thing we repeatedly heard was that my husband was too young. I would call care facilities, and he was...
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katrina4384
- Aug 19
- 1 min
Community Conversation - What recipes do you make that help your HD/JHD loved one keep on weight?
We asked, and you answered! What recipes do you make that help your HD/JHD loved one keep on weight? Here are a few, but we would love to...
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katrina4384
- Aug 10
- 4 min
20 Questions with Help 4 HD - Vicki Owen
1. What is your name? Vicki Owen 2. Where are you from? Plant City, FL 3. Who were you a caregiver for? I was a caregiver for my...
314 views1 comment
katrina4384
- Jul 27
- 4 min
20 Questions with Help 4 HD - Rachel Reimers
1. What's your name & how are you impacted by Huntington's Disease? My name is Rachel Reimers. My father-in-law passed away from...
219 views1 comment
katrina4384
- Jul 20
- 2 min
Community Conversation - What's the most rewarding part of caregiving for someone with HD/JHD?
We asked - and you answered! There are so many variables regarding Huntington's Disease and caregiving. We were excited to see everyone's...
182 views2 comments
katrina4384
- Jul 6
- 6 min
20 Questions with Help 4 HD - Michael Sabado
1.What is your name? Michael Sabado 2.Where are you from? I am originally from Sacramento, California. I spent most of my life in San...
215 views1 comment
katrina4384
- Jul 1
- 1 min
Community Conversations - with Help 4 HD
We asked the community, "If you had the option to take an HD genetic test at home, would you do it? Or would you rather be tested in a...
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katie8288
- Jun 23
- 0 min
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katrina4384
- Jun 22
- 3 min
20 Questions with Help 4 HD - Anonymously
1. How old are you? 46 2. Where do you live? A small city in Connecticut. 3. How old were you when you decided to test for Huntington’s...
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katrina4384
- Jun 1
- 4 min
20 Questions with Help 4 HD - Holly Muniz
1. What is your name, and where are you from? Holly Muniz, Burlington, NC 2. How are you affected by Huntington's Disease? I have a long...
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katrina4384
- May 25
- 3 min
20 Questions with Help 4 HD - Londen Tabor
What is your name? Londen Tabor Where are you from? Gillette, WY How old is your child with JHD? Autumn just turned 16. How old was your...
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