HD Awareness Month 2023, Some Patient/Family Response.
What do you wish healthcare workers were more mindful of with HD patients? Community Response: · I wish they were educated about...
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katie8288
- May 23
- 1 min
Help 4 HD is featured on Movement Disorder Policy Coalition
https://www.movementdisorderspolicy.org/news/2023/5/11/help-4-hd
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katie8288
- May 16
- 0 min
318 views0 comments
katie8288
- May 8
- 1 min
An HD Awareness Message from Charles Fisher
Hello, my name is Charles Fisher. This is my story about Huntington's disease. I got made fun of when I was younger, and I still get...
257 views0 comments
katie8288
- May 1
- 6 min
What has your family endured due to a lack of awareness about HD? The community responds.
• We planned a friend trip to Vegas after my husband’s diagnosis. We all sat down at a poker table to play. The whole table was just our...
240 views1 comment
katie8288
- Apr 25
- 4 min
HD community letter from Prilenia about the topline results from the PROOF-HD clinical trial.
April 25, 2023 Dear Huntington’s Disease Community, We are reaching out to provide an important update about the topline results from our...
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katie8288
- Apr 17
- 4 min
I am an adult living with JoHD—an interview with Ashley.
I am an adult living with JoHD—an interview with Ashley. We want to thank Ashely for doing this short interview with Help 4 HD. It helped...
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katie8288
- Apr 4
- 0 min
385 views0 comments
katie8288
- Mar 28
- 0 min
512 views0 comments
katrina4384
- Mar 13
- 1 min
Community Questions About AUSTEDO XR
Community Questions that Help 4 HD Received After our Virtual HIPE on February 25th AUSTEDO XR The answers to these questions were found...
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katie8288
- Mar 2
- 6 min
HIPE Virtual 2023, three community members' questions were addressed.
Question: Would putting your loved one on female hormone therapy, like low- estrin, bring down sexual aggression in a male living with...
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katie8288
- Feb 22
- 7 min
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO®...
427 views0 comments
katrina4384
- Feb 13
- 3 min
Caregiver Support - Join us on Tuesdays!
Help 4 HD International Caregiver Support Group Hello, I am Katie Jackson, CEO of Help 4 HD International. Our organization is dedicated...
269 views1 comment
katie8288
- Feb 3
- 1 min
What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s
What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s disease: a position paper
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katrina4384
- Nov 29, 2022
- 0 min
378 views0 comments
katrina4384
- Nov 8, 2022
- 0 min
251 views0 comments
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