Michael Sabado5 days ago7 minHelp 4 HD Opens Relief Fund for COVID-19 HD Patient AssistanceKatie Jackson: Hello everyone and welcome back to Help 4HD TV. Today we are going to be talking about our relief fund. We are getting ready to, be able to op...
katie8288Mar 272 minHelp 4 HD TV - Episode 1Katie Jackson: Hi everyone, and welcome to the very first episode of Help 4 HD TV. We all know with COVID 19 that we are feeling even isolated, more so than w...
Michael SabadoMar 181 minChanges at Help 4 HD due to COVID-19 (coronavirus)A message from Help 4 HD International's CEO, Katie Jackson. This message will be transcribed and available here shortly.
Michael SabadoMar 111 minHIPE Day Sacramento, PostponedMarch 10, 2020 To Our HD Community, It is with great regret and disappointment I write you to announce that Help 4 HD International HIPE, Sacramento CA, that...
Michael SabadoDec 30, 20193 minWAVE PRECISION-HD2 Community UpdateDecember 30, 2019 Dear global HD community, Today we announced encouraging topline results from PRECISION-HD2, our ongoing Phase 1b/2a placebo-controlled tri...
Michael SabadoDec 3, 20191 minHelp 4 HD and Meg's Fight 4 a Cure Holiday JHD ProgramApply for this program here: https://www.surveymonkey.com/r/JHDHoliday
Michael SabadoNov 14, 20193 minHuntington Study Group Announces Initiation of Phase III Clinical Study of ValbenazineFor Immediate Release: November 14, 2019 Huntington Study Group Huntington Study Group Announces Initiation of Phase III Clinical Study of Valbenazine for th...
Michael SabadoOct 17, 20192 minA Family StoryWhen Chrissy Land tested positive for Huntington’s disease over two decades ago, she had her entire life ahead of her. She was living in upstate New York and...
Michael SabadoOct 16, 20192 minUpdate on the Phase III GENERATION HD1 study 14 October 2019 Update on the Phase III GENERATION HD1 study Dear global HD patient community, Today we are pleased to announce that we are increasing the to...
Michael SabadoAug 21, 20191 minNew JHD Research Published In American Academy of Neurology JournalTwo new studies were published in Neurology ®, the official journal of the American Academy of Neurology.
Sharon McClellan ThomasonJun 3, 20194 minIACP Conference a Huge SuccessA shocking video that went viral in September spurred the Huntington’s Disease community into action. The ten-minute video showed a young man in West Virgini...
Sharon McClellan ThomasonJun 3, 20195 minHelp 4 HD International Hosts Inaugural JHD Kids Walk“Several years ago Jacey Mukka reached out to me to ask me if I could save her little sister, Karli,” says Dr. Jan Nolta, researcher at the University of Cal...
Sharon McClellan ThomasonJun 3, 20198 minThe Amazing, Astounding, Awesome, Super Hero Cameron BrownBright brown eyes and a big, engaging smile belie the fact that Cameron Brown, 13, struggles daily with the pain and suffering of Juvenile Huntington’s Disea...
Sharon McClellan ThomasonJun 3, 20197 minHaunted by Ghosts of Huntington’sHuntington’s disease has a reputation for being a “rare” disease. Statistics say that only about 30,000 people in the United States are affected by this dis...
Sharon McClellan ThomasonJun 3, 20196 minGuidelines for Genetic Testing Aren’t WorkingAs anyone with any knowledge or affiliation with Huntington’s disease knows, predictive testing to determine if one has the genetic mutation (and anyone with...
Sharon McClellan ThomasonJun 3, 20195 minNew Genetic Test Offers HopeFolks in the Huntington’s disease community are quite accustomed to the bad news that a genetic test can bring; now there’s a genetic test that can actually ...
Sharon McClellan ThomasonJun 3, 20193 minThrough the Eyes of an 11-year-old Child Living at RiskIt seems like I’m the only one in my life that lives with my grandmother and grandfather. They are great and all, probably better than most, but I hate being...
Sharon McClellan ThomasonJun 3, 201911 minSacramento Symposium Brings Hope“The symposium in Sacramento was the best HD [Huntington’s disease] gathering we have ever attended,” Bob Lohse wrote for his wife, Gail, who has HD. “We exp...
Sharon McClellan ThomasonJun 3, 20195 minWhy Mental Illnesses Should Be Treated as Seriously as Physical IllnessesA day in the life of someone who suffers from Huntington’s disease: July 22, 2016 My first trip to the emergency room for anxiety. *Alarm goes off* I literal...
