Patient Assistance Programs for INGREZZA
Navigating Insurance Approval & Patient Financial Assistance For More Information on Financial Assistance Programs For INGREZZA, Please...
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katrina4384
- Nov 20
- 0 min
191 views0 comments
katrina4384
- Nov 13
- 1 min
Help 4 HD's HD Resource Database: Phase One
Help 4 HD has created the HD Resource database to help those impacted by Huntington's disease and Juvenile onset Huntington's disease....
248 views0 comments
katrina4384
- Nov 5
- 3 min
This Quarter, Help 4 HD Asked a Few Questions, and the Community Responded!
I wish I knew that it would be possible to find happiness again when I found out about Huntington's disease. I wish I knew that most of...
290 views1 comment
katrina4384
- Nov 1
- 1 min
A Research Study about Anonymous Genetic Testing for HD
Survey Overview We are conducting a research study at the University of Texas Health Science Center at Houston about anonymous genetic...
269 views0 comments
katrina4384
- Oct 25
- 3 min
Let's Talk About GEN HD1 and GEN HD2
Can you explain what happened in Gen HD1 and why you have a Gen HD2 study? What we realized after we looked at generation HD1 was the...
294 views1 comment
katie8288
- Oct 18
- 1 min
FDA Grants Orphan Drug Designation for the Treatment of Huntington’s Disease
Dear Huntington’s Disease Advocacy Community, We are proud to share that today Sage Therapeutics announced the U.S. Food and Drug ...
221 views0 comments
katrina4384
- Sep 26
- 1 min
INGREZZA - For the treatment of chorea associated with Huntington's Disease (HD) TOOLKIT & RESOURCES
Find out more here: INGREZZA HDC Launch Toolkit_FINAL.pdf
212 views0 comments
katrina4384
- Sep 21
- 1 min
Help 4 HD Announces Symposium Schedules & Night Events!
Welcome Party: Luau Style! 4 Rooms Packed Full of Education, Resources, Support, and Community! Award Gala and Farewell Party! Thank you...
81 views0 comments
katrina4384
- Sep 14
- 1 min
Neurocrine Biosciences
Neurocrine Biosciences Announces U.S. FDA Accepts New Drug Application for INGREZZA (valbenazine) Oral Granules Sprinkle Formation
234 views0 comments
katie8288
- Aug 20
- 5 min
Understanding the Clinical Trial Process for Huntington's Disease Families
The clinical trial process is an essential part of the research journey, a critical step in bringing new treatments and therapies to our...
328 views0 comments
katie8288
- Jul 28
- 9 min
Help 4 HD International Exhibits and Presents at the Crisis Intervention Team International (CIT)
Help 4 HD International's LEEP program began in 2014 when Help 4 HD International exhibited at its first International Association of...
378 views1 comment
katrina4384
- Jul 16
- 2 min
Please stop saying that about HD...
1. So, this isn't quite on topic, but the one thing I'm tired of seeing..... I'm THRILLED Hollywood is recognizing HD, but my issue is...
266 views0 comments
katrina4384
- Jul 6
- 4 min
Testing, what to do first; words from the community.
We asked our social media followers, 'What is one thing you should do before getting tested?' the discussions were great! One of the very...
280 views0 comments
katrina4384
- Jun 28
- 3 min
We Asked, and the Community Answered.
We Asked, and the community Answered. When friends or the community ask how they can help, are you always at a loss for ideas? Let's...
337 views1 comment
katie8288
- Jun 21
- 5 min
PTC Therapeutics Shares Positive Interim Data from PIVOT-HD Clinical Trial
PTC Therapeutics Shares Positive Interim Data from PIVOT-HD Clinical Trial in Huntington's Disease Patients June 21, 2023 PDF Version -...
255 views0 comments
katie8288
- Jun 21
- 2 min
uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
Dear Huntington’s Disease Patient Organization Leaders, We are writing to let you know that this morning uniQure issued a press release...
238 views0 comments
katie8288
- Jun 8
- 2 min
Eyes, Ears, Nose, and Paws help Olivia, who lives with JoHD, find her forever partner
Olivia Eiger is a social teen, who recently celebrated her 17th birthday and is planning to commemorate both her birthday and going into...
369 views0 comments
katie8288
- May 26
- 8 min
HD Awareness Month 2023, Some Patient/Family Response.
What do you wish healthcare workers were more mindful of with HD patients? Community Response: · I wish they were educated about...
304 views0 comments
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