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katie8288
3 days ago2 min read
Creating Meaningful Connections: Crafting a Support Network for Your Final Days. Part II
Reflections for the Final Days of Life: As you think about this important time, here are some gentle questions that might help you...
17 views0 comments

katie8288
6 days ago16 min read
A Helpful Template to Guide You in Submitting Your Public Response to CMS
We understand that navigating the CMS public comment portal can be challenging and may not fully meet accessibility standards. To assist...
217 views0 comments

katie8288
Feb 22 min read
Creating Meaningful Connections: Crafting a Support Network for Your Last Days. Part I
What do you envision the last phase of your life to be like? (We will explore this in more detail shortly.) How would you like to handle...
319 views0 comments

katrina4384
Jan 292 min read
Love Knows No Bounds ~ Virtual HIPE
We are EXCITED to be right around the corner from the first Help 4 HD event of 2025! On February 1st, from 8:00 AM to 12:35 PM (Pacific...
210 views0 comments

katie8288
Jan 193 min read
Katie Jackson's Presentation at the FDA's Patient Listening Session on Gene Therapy
My name is Katie Jackson, CEO of Help 4 HD International and a Huntington's disease family member. My husband passed away from HD five...
326 views0 comments

katie8288
Jan 123 min read
Help 4 HD Family Relief Fund Gives $113,505 in Relief to Families in Need Impacted by HD/JHD in 2024
Today, we’re excited to share some updates about the Help for HD Family Relief Fund and the amazing strides we've made over the years....
305 views0 comments

katrina4384
Dec 22, 20242 min read
Bloopy the Alien Learns about Huntington's Disease: by 12-year-old Emma Wajswasser
December 11, 2024 — Toronto, Ontario, Canada Most people have never heard of Huntington’s disease. This lack of awareness means people...
284 views0 comments


katrina4384
Dec 15, 20242 min read
Quick Overview of Seizures in JoHD at Help 4 HD Symposium:
The focus of this discussion was to provide you with the right vocabulary and tools to communicate effectively with your physicians about...
253 views0 comments

katrina4384
Dec 11, 20240 min read
305 views0 comments

katrina4384
Dec 8, 20243 min read
Holiday gift-giving ideas for someone with advanced HD
When it comes to gift-giving for the holidays, finding the perfect present for someone in the advanced stages of Huntington's disease...
186 views0 comments

katrina4384
Dec 2, 20240 min read
315 views0 comments

katrina4384
Dec 1, 20241 min read
Help 4 HD ~ Help 4 the Holidays
Our annual Help 4 the Holiday food program is OPEN! Click here to apply: https://www.help4hd.org/events-1/december-help-4-the-holidays-fo...
112 views0 comments

katrina4384
Nov 24, 20246 min read
Questions to consider when looking for a care home.
Placement comes with a ton of emotion. Try to remember never to promise your loved one that you will or will not place them into a...
236 views0 comments

katrina4384
Nov 17, 20246 min read
Who am I? PT. 2
As I got older, I saw more and more how HD impacted me too. As a pre-teen, grabbing cash from his wallet while he slept all afternoon and...
313 views0 comments


katie8288
Nov 13, 202411 min read
Wave received supportive initial feedback from FDA on WVE-003. FDA also granted WVE-003 Orphan Drug Designation.
November 12, 2024 Achieved first-ever RNA editing in humans in RestorAATion-2 trial of WVE-006 (GalNAc-AIMer) in alpha-1 antitrypsin...
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katrina4384
Nov 10, 20243 min read
Who am I? PT. 1
Figuring out who you are and who you want to be is difficult for any kid. Are you a person who plays sports? Do you enjoy art, music,...
317 views0 comments

katie8288
Nov 8, 20240 min read
319 views0 comments

katrina4384
Nov 3, 20241 min read
Help 4 HD's Help 4 the Holidays is OPEN
Apply here: https://www.help4hd.org/events-1/november-help-4-the-holiday-food-program-1-1/form
141 views0 comments

katrina4384
Oct 27, 20242 min read
Navigating Grief with a Side of Dark Humor
Let me tell you, grief is a wild ride—a bizarre mix of emotions that can leave you feeling as if you're constantly stuck in a bad movie,...
266 views0 comments

katrina4384
Oct 20, 20243 min read
What I've learned - an essay by Sharon Quigley
For so long my life was bound to someone else. When I married, I vowed to love another “in sickness and in health”. What they don’t tell...
130 views0 comments
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