Since 2014, Help 4 HD has had an annual Symposium, and the location changes yearly to include as many people as possible. We partner with HD and JHD specialists from all over the United States to bring our community the best information available. We continued offering this program during the pandemic but needed to temporarily move it to a virtual platform. We went hybrid for 2021 and are excited to be fully in-person for 2022. We will see you in Nashville!
Help 4 HD TV
Help 4 HD TV is a weekly Vlog show that is premiered on YouTube. We will be talking about resources, giving updates, and peer to peer support shows through this program. Please visit Help 4 HD TV on YouTube and remember to subscribe to our YouTube channel and ring the bell to receive notifications on when new episodes post to YouTube.
Highly Interactive Participant Education (HIPE) Description: Help 4 HD conceived this interactive program in response to the needs of families within the HD community. Together, caregivers, patients, and medical professionals versed in HD will discuss scenarios that plague families and will, as a group, suggest strategies and tactics for dealing with these issues. This will allow the community, particularly families that have tried other options without much success, to look at possible solutions to common problems. It will also allow professionals to learn more from the community about the issues we face. Help 4 HD envisions a group of people with similar but different backgrounds sharing ideas about situations that are often difficult to handle. Caregivers can support others in similar positions, and professionals can support these conversations with added direction and advice. We see this program as a way of offering to families within the HD community and to medical professionals a “tool kit” for dealing with a wide range of issues.
HELP 4 HD RELIEF FUND
The Help 4 HD Relief Fund was started to help individuals in the HD/JHD community with emergency support. Many times, our community needs money for medication, food, clothing, and other necessities. When individuals are in limbo with social services or loss of employment and benefits, this fund will give relief to people who are in dire need, as long as there is money in this special account. There are very few organizations that have been willing to help our beloved HD/JHD families with an emergency fund. Individuals can apply for assistance by completing the online form.
LAW ENFORCEMENT EDUCATION PROGRAM (LEEP)
Recognizing the need to educate law enforcement about Huntington’s disease, we launched LEEP in 2014 at the International Association of Chiefs of Police (IACP) conference in Orlando, FL. We are on a mission to educate our police officers, firefighters, EMTs and other law enforcement officials about how to identify HD and other neurological disorders and how to approach individuals who may be cognitively impaired. Please support this very important program. To download brochure for your local law enforcement/first responder agency, click here: Law Enforcement Brochure To watch one of our law enforcement education video’s please visit: https://vimeo.com/310700022
THE HUNTINGTON'S POST
The first international newspaper for the Huntington’s disease community, “The Huntington’s Post” is an online newspaper written by and for the Huntington’s disease community. Articles about research and events are written by the community for the community. Your donations will help us continue to maintain this website and publish vital and informational articles all about JHD/HD and trials/studies!
HELP 4 HD LIVE!
Found on BlogTalkRadio, the first international radio show for Huntington’s disease awareness brings science, research, clinical trials, education, and inspiration to its community. Help 4 HD Radio has 100,000+ listeners and 400+ archived episodes. Help keep the first international radio show for Huntington’s disease on the air. This program is made possible by an education grant from Teva Pharmaceuticals.
HELP 4 JHD DOCUMENTARY
Winner of 19 awards, this documentary tells the stories of children with Juvenile Huntington's disease and their families. There are no treatments and no cure for JHD. It is always fatal. All proceeds from this film go to the JHD research at UC Davis.
HELP 4 JHD
This program designed to promote JHD research and awareness. Our first walk was on June 13, 2015, at McKinley Park in Sacramento, CA, to raise money for Dr. Jan Nolta’s JHD Research Initiative (the first of its kind ever for JHD) at UC Davis. Since that event the community has come together through Help 4 JHD and hosted events across the country. All net proceeds from these events went directly to JHD research.
RESEARCH 4 HD
If you would like to host a event or donate to a Huntington’s disease or a Juvenile Huntington’s disease research please contact us through our contact page. We will help support you throughout the whole process and one hundred percent of the net proceeds from the event will go the HD/JHD researcher of your choice.