A shocking video that went viral in September spurred the Huntington’s Disease community into action. The ten-minute video showed a young...

“Several years ago Jacey Mukka reached out to me to ask me if I could save her little sister, Karli,” says Dr. Jan Nolta, researcher at...

Bright brown eyes and a big, engaging smile belie the fact that Cameron Brown, 13, struggles daily with the pain and suffering of...

Huntington’s disease has a reputation for being a “rare” disease.  Statistics say that only about 30,000 people in the United States are...

As anyone with any knowledge or affiliation with Huntington’s disease knows, predictive testing to determine if one has the genetic...

Folks in the Huntington’s disease community are quite accustomed to the bad news that a genetic test can bring; now there’s a genetic...

It seems like I’m the only one in my life that lives with my grandmother and grandfather. They are great and all, probably better than...

“The symposium in Sacramento was the best HD [Huntington’s disease] gathering we have ever attended,” Bob Lohse wrote for his wife, Gail,...

A day in the life of someone who suffers from Huntington’s disease: July 22, 2016 My first trip to the emergency room for anxiety. *Alarm...

Should people who are suffering from terminal illnesses be allowed to choose “death with dignity”? Should families of loved ones who are...

They say there’s a reason for everything. So there must be a reason my life is affected by Huntington’s disease. And that is the reason...

I would like to begin this article with some of my favorite quotes about being a patient advocate: “Advocacy: To change ‘what is’ to...

One of my best friends bravely decided to get tested this year, and she ended up testing positive. After she shared the news with me, I...

Foreword Brent Walker, from Seattle, Washington, approached me about three months ago about a short story he’d written. I asked him to...

When you ask most women what their dream man is, they say something like this: “I want a guy who is tall, dark, handsome, and romantic....

Would you look at that? This machine I’ve been playing has one of them old school levers on the side. You know, the ones that are the...

Whoops! That was one of my what I like to call “knee-jerk reaction” thoughts. Depression is a bitch that way. I know all women aren’t...

Voices from all across the United States are being heard by the Food and Drug Administration (FDA) in Silver Spring, Maryland. Help 4 HD...

Two shadows live in this house. One is male, 6-feet tall with a husky build, 31 years old. The other is female, 5’7” tall with a slim...

Have you ever wanted to sit down and just talk to a healthcare professional who is actually knowledgeable about Huntington’s and Juvenile...