Community responses: 1. I feel like Hospice should be the very last option at the very end of life. In our poor county, the only benefit...

September 18th, 2022 Dear Huntington’s patient community leaders, Following your request to receive timely updates about our Huntington’s...

Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial with Initial Results Indicating Allele-Selective Target...

https://youtu.be/tP82slYQCEU

1. What is your name? Lauren Holder 2. How old are you? 36 3. At what age were you tested for HD? 20 4. What is the hardest thing for you...

1. "The most frustrating thing we repeatedly heard was that my husband was too young. I would call care facilities, and he was...

We asked, and you answered! What recipes do you make that help your HD/JHD loved one keep on weight? Here are a few, but we would love to...

1. What is your name? Vicki Owen 2. Where are you from? Plant City, FL 3. Who were you a caregiver for? I was a caregiver for my...

1. What's your name & how are you impacted by Huntington's Disease? My name is Rachel Reimers. My father-in-law passed away from...

We asked - and you answered! There are so many variables regarding Huntington's Disease and caregiving. We were excited to see everyone's...

1.​What is your name? ​Michael Sabado 2.​Where are you from? ​I am originally from Sacramento, California. I spent most of my life in San...

We asked the community, "If you had the option to take an HD genetic test at home, would you do it? Or would you rather be tested in a...

1. How old are you? 46 2. Where do you live? A small city in Connecticut. 3. How old were you when you decided to test for Huntington’s...

1. What is your name, and where are you from? Holly Muniz, Burlington, NC 2. How are you affected by Huntington's Disease? I have a long...

What is your name? Londen Tabor Where are you from? Gillette, WY How old is your child with JHD? Autumn just turned 16. How old was your...