Michael Sabado
New JHD Research Published In American Academy of Neurology Journal
Two new studies were published in Neurology ®, the official journal of the American Academy of Neurology.
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Sharon McClellan Thomason
- Jun 3, 2019
- 4 min
IACP Conference a Huge Success
A shocking video that went viral in September spurred the Huntington’s Disease community into action. The ten-minute video showed a young...
37 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Help 4 HD International Hosts Inaugural JHD Kids Walk
“Several years ago Jacey Mukka reached out to me to ask me if I could save her little sister, Karli,” says Dr. Jan Nolta, researcher at...
50 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 8 min
The Amazing, Astounding, Awesome, Super Hero Cameron Brown
Bright brown eyes and a big, engaging smile belie the fact that Cameron Brown, 13, struggles daily with the pain and suffering of...
25 views1 comment
Sharon McClellan Thomason
- Jun 3, 2019
- 7 min
Haunted by Ghosts of Huntington’s
Huntington’s disease has a reputation for being a “rare” disease. Statistics say that only about 30,000 people in the United States are...
83 views1 comment
Sharon McClellan Thomason
- Jun 3, 2019
- 6 min
Guidelines for Genetic Testing Aren’t Working
As anyone with any knowledge or affiliation with Huntington’s disease knows, predictive testing to determine if one has the genetic...
49 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
New Genetic Test Offers Hope
Folks in the Huntington’s disease community are quite accustomed to the bad news that a genetic test can bring; now there’s a genetic...
37 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 3 min
Through the Eyes of an 11-year-old Child Living at Risk
It seems like I’m the only one in my life that lives with my grandmother and grandfather. They are great and all, probably better than...
9 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 11 min
Sacramento Symposium Brings Hope
“The symposium in Sacramento was the best HD [Huntington’s disease] gathering we have ever attended,” Bob Lohse wrote for his wife, Gail,...
13 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Why Mental Illnesses Should Be Treated as Seriously as Physical Illnesses
A day in the life of someone who suffers from Huntington’s disease: July 22, 2016 My first trip to the emergency room for anxiety. *Alarm...
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Sharon McClellan Thomason
- Jun 3, 2019
- 4 min
A Question of Life and Death
Should people who are suffering from terminal illnesses be allowed to choose “death with dignity”? Should families of loved ones who are...
6 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 4 min
HD Youth: We Are the Future
They say there’s a reason for everything. So there must be a reason my life is affected by Huntington’s disease. And that is the reason...
10 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 7 min
The Patient Advocate: Celebrating the Season of Giving
I would like to begin this article with some of my favorite quotes about being a patient advocate: “Advocacy: To change ‘what is’ to...
27 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 3 min
She Will Dance
One of my best friends bravely decided to get tested this year, and she ended up testing positive. After she shared the news with me, I...
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Sharon McClellan Thomason
- Jun 3, 2019
- 7 min
“Look Up”: A Short Story by Brent J. Walker
Foreword Brent Walker, from Seattle, Washington, approached me about three months ago about a short story he’d written. I asked him to...
24 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 9 min
“Look Up”: Part Two, a Short Story by Brent J. Walker
When you ask most women what their dream man is, they say something like this: “I want a guy who is tall, dark, handsome, and romantic....
17 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 16 min
“Look Up,” Part Three: A Short Story by Brent J. Walker
Would you look at that? This machine I’ve been playing has one of them old school levers on the side. You know, the ones that are the...
8 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 13 min
“Look Up,” Conclusion: A Short Story by Brent J. Walker
Whoops! That was one of my what I like to call “knee-jerk reaction” thoughts. Depression is a bitch that way. I know all women aren’t...
5 views1 comment
Sharon McClellan Thomason
- Jun 3, 2019
- 2 min
FDA Writes Back
Voices from all across the United States are being heard by the Food and Drug Administration (FDA) in Silver Spring, Maryland. Help 4 HD...
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Sharon McClellan Thomason
- Jun 3, 2019
- 3 min
Two Shadows
Two shadows live in this house. One is male, 6-feet tall with a husky build, 31 years old. The other is female, 5’7” tall with a slim...
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