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HD Awareness Month 2023, Some Patient/Family Response.
What do you wish healthcare workers were more mindful of with HD patients? Community Response: · I wish they were educated about...
katie8288
May 26, 20238 min read
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Help 4 HD is featured on Movement Disorder Policy Coalition
https://www.movementdisorderspolicy.org/news/2023/5/11/help-4-hd
katie8288
May 23, 20231 min read
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katie8288
May 16, 20230 min read
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An HD Awareness Message from Charles Fisher
Hello, my name is Charles Fisher. This is my story about Huntington's disease. I got made fun of when I was younger, and I still get...
katie8288
May 8, 20231 min read
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What has your family endured due to a lack of awareness about HD? The community responds.
• We planned a friend trip to Vegas after my husband’s diagnosis. We all sat down at a poker table to play. The whole table was just our...
katie8288
May 1, 20236 min read
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HD community letter from Prilenia about the topline results from the PROOF-HD clinical trial.
April 25, 2023 Dear Huntington’s Disease Community, We are reaching out to provide an important update about the topline results from our...
katie8288
Apr 25, 20234 min read
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I am an adult living with JoHD—an interview with Ashley.
I am an adult living with JoHD—an interview with Ashley. We want to thank Ashely for doing this short interview with Help 4 HD. It helped...
katie8288
Apr 17, 20234 min read
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katie8288
Apr 4, 20230 min read
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katie8288
Mar 28, 20230 min read
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katie8288
Mar 21, 20230 min read
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Community Questions About AUSTEDO XR
Community Questions that Help 4 HD Received After our Virtual HIPE on February 25th AUSTEDO XR The answers to these questions were found...
katrina4384
Mar 13, 20231 min read
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HIPE Virtual 2023, three community members' questions were addressed.
Question: Would putting your loved one on female hormone therapy, like low- estrin, bring down sexual aggression in a male living with...
katie8288
Mar 2, 20236 min read
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Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO®...
katie8288
Feb 22, 20237 min read
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Caregiver Support - Join us on Tuesdays!
Help 4 HD International Caregiver Support Group Hello, I am Katie Jackson, CEO of Help 4 HD International. Our organization is dedicated...
katrina4384
Feb 13, 20233 min read
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What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s
What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s disease: a position paper
katie8288
Feb 3, 20231 min read
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katie8288
Jan 11, 20230 min read
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katie8288
Dec 8, 20220 min read
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katrina4384
Nov 29, 20220 min read
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katrina4384
Nov 16, 20220 min read
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katrina4384
Nov 8, 20220 min read
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