In less than 15 minutes, you can participate in an anonymous survey as an adult (over the age of 21) caregiver of someone diagnosed with...

"The study met its primary endpoint, demonstrating a statistically significant difference as measured by the HD-Cognitive Assessment...

Are you aware that genetics are more than just lineage? Within your family, you may have very different experiences with medications or...

When you first meet Jamie, you will notice her warmth, smile, and genuine interest in those around her. We are excited about what this...

As Tanita Allen, author of the book We Exist, explained in a recent conversation, “We all need to be self-advocates, because our society...

https://www.tevausa.com/news-and-media/press-releases/tevas-new-real-world-evidence-presented-at-the-2024-aan-annual-meeting-confirms-eff...

On April 27th, Help 4 HD International will host our first in-person HIPE education event for 2024. We have a great line-up with...

Welcome to the heart of “We Exist,” a compelling autobiography and memoir penned by Tanita Allen. Experience a journey that goes beyond...

Hi, I’m Ashley Harmon. I am 21 and have Juvenile Onset Huntington’s Disease. I am an adult, not a child, but yet, in many ways, I feel...

This link will take you to a video of Katie and her daughter, Madison, who are talking about the impacts of HD and what they hope to see...

People in our community have reached out to Help 4 HD requesting a different type of support, and we are excited to announce that we have...

HDYO is hosting its 6th North American HD Young Person Camp on August 11-15 from Camp St Charles in Maryland. The camp offers young...

January 26, 2024 Dear Huntington’s Disease Community, We hope 2024 is off to a great start for you and your loved ones. To build on...

BLUE BELL, Pa.--(BUSINESS WIRE)--Mitochon Pharmaceuticals today announced that it was awarded approval from EMA to begin enrollment for a...

Accelerating Access to Critical Therapies for ALS Act – ACT for ALS - Action Plan for Rare Neurodegenerative Diseases including...