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Caregiver Support - Join us on Tuesdays!
Help 4 HD International Caregiver Support Group Hello, I am Katie Jackson, CEO of Help 4 HD International. Our organization is dedicated...
katrina4384
Feb 13, 20233 min read
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What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s
What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s disease: a position paper
katie8288
Feb 3, 20231 min read
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katie8288
Jan 11, 20230 min read
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katie8288
Dec 8, 20220 min read
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katrina4384
Nov 29, 20220 min read
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katrina4384
Nov 16, 20220 min read
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katrina4384
Nov 8, 20220 min read
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katrina4384
Oct 19, 20220 min read
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Community Conversation - Do you feel like hospice is a service that is helpful for HD/JHD families?
Community responses: 1. I feel like Hospice should be the very last option at the very end of life. In our poor county, the only benefit...
katrina4384
Oct 2, 20222 min read
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katrina4384
Sep 29, 20220 min read
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GENERATION HD2, a new Phase II clinical study
September 18th, 2022 Dear Huntington’s patient community leaders, Following your request to receive timely updates about our Huntington’s...
katrina4384
Sep 20, 20224 min read
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Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial with Initial Results Indicating Allele-Selective Target...
katrina4384
Sep 20, 20229 min read
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I miss the relationship my husband and I used to have. Will it ever come back?
https://youtu.be/tP82slYQCEU
katrina4384
Sep 16, 20221 min read
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20 Questions with Help 4 HD - Lauren Holder
1. What is your name? Lauren Holder 2. How old are you? 36 3. At what age were you tested for HD? 20 4. What is the hardest thing for you...
katrina4384
Sep 14, 20225 min read
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Community Conversation -
1. "The most frustrating thing we repeatedly heard was that my husband was too young. I would call care facilities, and he was...
katrina4384
Sep 7, 20223 min read
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katrina4384
Aug 25, 20220 min read
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Community Conversation - What recipes do you make that help your HD/JHD loved one keep on weight?
We asked, and you answered! What recipes do you make that help your HD/JHD loved one keep on weight? Here are a few, but we would love to...
katrina4384
Aug 19, 20221 min read
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20 Questions with Help 4 HD - Vicki Owen
1. What is your name? Vicki Owen 2. Where are you from? Plant City, FL 3. Who were you a caregiver for? I was a caregiver for my...
katrina4384
Aug 10, 20224 min read
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katie8288
Aug 10, 20220 min read
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20 Questions with Help 4 HD - Rachel Reimers
1. What's your name & how are you impacted by Huntington's Disease? My name is Rachel Reimers. My father-in-law passed away from...
katrina4384
Jul 27, 20224 min read
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