I wish I knew that it would be possible to find happiness again when I found out about Huntington's disease. I wish I knew that most of...

Survey Overview We are conducting a research study at the University of Texas Health Science Center at Houston about anonymous genetic...

Can you explain what happened in Gen HD1 and why you have a Gen HD2 study? What we realized after we looked at generation HD1 was the...

Dear Huntington’s Disease Advocacy Community, We are proud to share that today Sage Therapeutics announced the U.S. Food and Drug ...

Find out more here: INGREZZA HDC Launch Toolkit_FINAL.pdf

Welcome Party: Luau Style! 4 Rooms Packed Full of Education, Resources, Support, and Community! Award Gala and Farewell Party! Thank you...

Neurocrine Biosciences Announces U.S. FDA Accepts New Drug Application for INGREZZA (valbenazine) Oral Granules Sprinkle Formation

The clinical trial process is an essential part of the research journey, a critical step in bringing new treatments and therapies to our...

Help 4 HD International's LEEP program began in 2014 when Help 4 HD International exhibited at its first International Association of...

1. So, this isn't quite on topic, but the one thing I'm tired of seeing..... I'm THRILLED Hollywood is recognizing HD, but my issue is...

We asked our social media followers, 'What is one thing you should do before getting tested?' the discussions were great! One of the very...

We Asked, and the community Answered. When friends or the community ask how they can help, are you always at a loss for ideas? Let's...

PTC Therapeutics Shares Positive Interim Data from PIVOT-HD Clinical Trial in Huntington's Disease Patients June 21, 2023 PDF Version -...

Dear Huntington’s Disease Patient Organization Leaders, We are writing to let you know that this morning uniQure issued a press release...

Olivia Eiger is a social teen, who recently celebrated her 17th birthday and is planning to commemorate both her birthday and going into...

What do you wish healthcare workers were more mindful of with HD patients? Community Response: · I wish they were educated about...

https://www.movementdisorderspolicy.org/news/2023/5/11/help-4-hd

Hello, my name is Charles Fisher. This is my story about Huntington's disease. I got made fun of when I was younger, and I still get...

• We planned a friend trip to Vegas after my husband’s diagnosis. We all sat down at a poker table to play. The whole table was just our...