HIPE Virtual 2023, three community members' questions were addressed.
Question: Would putting your loved one on female hormone therapy, like low- estrin, bring down sexual aggression in a male living with...
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katie8288
- Feb 22, 2023
- 7 min
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO®...
442 views0 comments
katrina4384
- Feb 13, 2023
- 3 min
Caregiver Support - Join us on Tuesdays!
Help 4 HD International Caregiver Support Group Hello, I am Katie Jackson, CEO of Help 4 HD International. Our organization is dedicated...
312 views1 comment
katie8288
- Feb 3, 2023
- 1 min
What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s
What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s disease: a position paper
139 views0 comments
katrina4384
- Nov 29, 2022
- 0 min
403 views0 comments
katrina4384
- Nov 8, 2022
- 0 min
255 views0 comments
katrina4384
- Oct 2, 2022
- 2 min
Community Conversation - Do you feel like hospice is a service that is helpful for HD/JHD families?
Community responses: 1. I feel like Hospice should be the very last option at the very end of life. In our poor county, the only benefit...
218 views0 comments
katrina4384
- Sep 20, 2022
- 4 min
GENERATION HD2, a new Phase II clinical study
September 18th, 2022 Dear Huntington’s patient community leaders, Following your request to receive timely updates about our Huntington’s...
193 views0 comments
katrina4384
- Sep 20, 2022
- 9 min
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial with Initial Results Indicating Allele-Selective Target...
223 views0 comments
katrina4384
- Sep 16, 2022
- 1 min
I miss the relationship my husband and I used to have. Will it ever come back?
https://youtu.be/tP82slYQCEU
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katrina4384
- Sep 14, 2022
- 5 min
20 Questions with Help 4 HD - Lauren Holder
1. What is your name? Lauren Holder 2. How old are you? 36 3. At what age were you tested for HD? 20 4. What is the hardest thing for you...
312 views0 comments
katrina4384
- Sep 7, 2022
- 3 min
Community Conversation -
1. "The most frustrating thing we repeatedly heard was that my husband was too young. I would call care facilities, and he was...
181 views0 comments
katrina4384
- Aug 19, 2022
- 1 min
Community Conversation - What recipes do you make that help your HD/JHD loved one keep on weight?
We asked, and you answered! What recipes do you make that help your HD/JHD loved one keep on weight? Here are a few, but we would love to...
305 views0 comments
katrina4384
- Aug 10, 2022
- 4 min
20 Questions with Help 4 HD - Vicki Owen
1. What is your name? Vicki Owen 2. Where are you from? Plant City, FL 3. Who were you a caregiver for? I was a caregiver for my...
335 views1 comment
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