I would like to begin this article with some of my favorite quotes about being a patient advocate: “Advocacy: To change ‘what is’ to...

One of my best friends bravely decided to get tested this year, and she ended up testing positive. After she shared the news with me, I...

Foreword Brent Walker, from Seattle, Washington, approached me about three months ago about a short story he’d written. I asked him to...

When you ask most women what their dream man is, they say something like this: “I want a guy who is tall, dark, handsome, and romantic....

Would you look at that? This machine I’ve been playing has one of them old school levers on the side. You know, the ones that are the...

Whoops! That was one of my what I like to call “knee-jerk reaction” thoughts. Depression is a bitch that way. I know all women aren’t...

Voices from all across the United States are being heard by the Food and Drug Administration (FDA) in Silver Spring, Maryland. Help 4 HD...

Two shadows live in this house. One is male, 6-feet tall with a husky build, 31 years old. The other is female, 5’7” tall with a slim...

Have you ever wanted to sit down and just talk to a healthcare professional who is actually knowledgeable about Huntington’s and Juvenile...

This is the first article in a four-part series. Traditional teachings of the Western culture say that there are five stages of grief...

Grief is not a one-size-fits-all tidy little package that fits neatly into a box to be stored away. Not everyone grieves in the same way...

Grief is not limited to caregivers, and it can sometimes result in rifts among families who should be coming together instead of being...

How does one even begin to cope with the depths of such all-encompassing grief? Recover-from-Grief.com suggests that first, you must give...

The recent series, “The Grief of Huntington’s Disease,” published in Help 4 HD’s The Huntington’s Post,  an outpouring of response from...

**Mature material has been changed for our audience** The following is a transcript of the HIPE (Highly Interactive Participant...

One thing that families living with HD/JHD learn fairly quickly is resilience. As a grassroots nonprofit run by family members living...

It happens out of the blue. There you are, going along with what appears to be a somewhat normal moment in time, when suddenly the...

Kids were a big focus for part of the questions asked of the HIPE panel in Sacramento, at our Highly Interactive 📷Participant Education...

What gives? Suddenly, your loved one with Huntington’s disease is making no sense at all; his or her behavior is totally off the wall....

“December 15th will be two years since we lost Cory,” says Stacey Sargent, who lost her son to JHD when he was 21. “Every holiday and...