As Tanita Allen, author of the book We Exist, explained in a recent conversation, “We all need to be self-advocates, because our society...

https://www.tevausa.com/news-and-media/press-releases/tevas-new-real-world-evidence-presented-at-the-2024-aan-annual-meeting-confirms-eff...

On April 27th, Help 4 HD International will host our first in-person HIPE education event for 2024. We have a great line-up with...

Welcome to the heart of “We Exist,” a compelling autobiography and memoir penned by Tanita Allen. Experience a journey that goes beyond...

Hi, I’m Ashley Harmon. I am 21 and have Juvenile Onset Huntington’s Disease. I am an adult, not a child, but yet, in many ways, I feel...

This link will take you to a video of Katie and her daughter, Madison, who are talking about the impacts of HD and what they hope to see...

People in our community have reached out to Help 4 HD requesting a different type of support, and we are excited to announce that we have...

HDYO is hosting its 6th North American HD Young Person Camp on August 11-15 from Camp St Charles in Maryland. The camp offers young...

January 26, 2024 Dear Huntington’s Disease Community, We hope 2024 is off to a great start for you and your loved ones. To build on...

BLUE BELL, Pa.--(BUSINESS WIRE)--Mitochon Pharmaceuticals today announced that it was awarded approval from EMA to begin enrollment for a...

Accelerating Access to Critical Therapies for ALS Act – ACT for ALS - Action Plan for Rare Neurodegenerative Diseases including...

Dear Huntington’s Disease Patient Organization Leaders, This morning, uniQure issued a press release announcing interim data from 39...

Navigating Insurance Approval & Patient Financial Assistance For More Information on Financial Assistance Programs For INGREZZA, Please...

Help 4 HD has created the HD Resource database to help those impacted by Huntington's disease and Juvenile onset Huntington's disease....

I wish I knew that it would be possible to find happiness again when I found out about Huntington's disease. I wish I knew that most of...

Survey Overview We are conducting a research study at the University of Texas Health Science Center at Houston about anonymous genetic...

Can you explain what happened in Gen HD1 and why you have a Gen HD2 study? What we realized after we looked at generation HD1 was the...