This link will take you to a video of Katie and her daughter, Madison, who are talking about the impacts of HD and what they hope to see...

People in our community have reached out to Help 4 HD requesting a different type of support, and we are excited to announce that we have...

HDYO is hosting its 6th North American HD Young Person Camp on August 11-15 from Camp St Charles in Maryland. The camp offers young...

January 26, 2024 Dear Huntington’s Disease Community, We hope 2024 is off to a great start for you and your loved ones. To build on...

BLUE BELL, Pa.--(BUSINESS WIRE)--Mitochon Pharmaceuticals today announced that it was awarded approval from EMA to begin enrollment for a...

Accelerating Access to Critical Therapies for ALS Act – ACT for ALS - Action Plan for Rare Neurodegenerative Diseases including...

Dear Huntington’s Disease Patient Organization Leaders, This morning, uniQure issued a press release announcing interim data from 39...

Navigating Insurance Approval & Patient Financial Assistance For More Information on Financial Assistance Programs For INGREZZA, Please...

Help 4 HD has created the HD Resource database to help those impacted by Huntington's disease and Juvenile onset Huntington's disease....

I wish I knew that it would be possible to find happiness again when I found out about Huntington's disease. I wish I knew that most of...

Survey Overview We are conducting a research study at the University of Texas Health Science Center at Houston about anonymous genetic...

Can you explain what happened in Gen HD1 and why you have a Gen HD2 study? What we realized after we looked at generation HD1 was the...

Dear Huntington’s Disease Advocacy Community, We are proud to share that today Sage Therapeutics announced the U.S. Food and Drug ...

Find out more here: INGREZZA HDC Launch Toolkit_FINAL.pdf

Welcome Party: Luau Style! 4 Rooms Packed Full of Education, Resources, Support, and Community! Award Gala and Farewell Party! Thank you...

Neurocrine Biosciences Announces U.S. FDA Accepts New Drug Application for INGREZZA (valbenazine) Oral Granules Sprinkle Formation

The clinical trial process is an essential part of the research journey, a critical step in bringing new treatments and therapies to our...