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Understanding the Power of HD Community: A Conversation with Help 4 HD International and HDSA
Welcome to our latest blog post where we dive into an exciting initiative for the Huntington’s disease (HD) community—Power HD. Recently,...
katie8288
Aug 10, 20242 min read
Interim data from the ongoing HD Gene TRX-1 and 2 clinical trials.
• A significant, dose-dependent, slowing in disease progression measured by cUHDRS was observed through 24 months in patients receiving...
katie8288
Jul 9, 20241 min read
The "Jim-i-sphere" Concept
One day, I was sitting with my mom at the table. She expressed deep concern that my sweet daddy, Jim, was "'backsliding' into his old...
katrina4384
Jul 8, 20243 min read
Epilepsy in Pediatric-onset Huntington's Disease Survey.
In less than 15 minutes, you can participate in an anonymous survey as an adult (over the age of 21) caregiver of someone diagnosed with...
katrina4384
Jun 18, 20241 min read
katrina4384
Jun 12, 20240 min read
Sage Therapeutics Announces Topline Results from the Phase 2 SURVEYOR Study.
"The study met its primary endpoint, demonstrating a statistically significant difference as measured by the HD-Cognitive Assessment...
katrina4384
Jun 11, 20241 min read
Are you taking the right medications based on your unique DNA?
Are you aware that genetics are more than just lineage? Within your family, you may have very different experiences with medications or...
katrina4384
Jun 10, 20241 min read
Jamie Holloway ~ Help 4 HD's newest team member!
When you first meet Jamie, you will notice her warmth, smile, and genuine interest in those around her. We are excited about what this...
katrina4384
May 20, 20242 min read
Forbes Features Tanita Allen in Why Self-Advocacy Can Help You Become an Invaluable Collaborator.
As Tanita Allen, author of the book We Exist, explained in a recent conversation, “We all need to be self-advocates, because our society...
katrina4384
May 7, 20241 min read
Teva’s New Real-World Evidence Confirms Effectiveness and Patient Satisfaction for HD Chorea with the 4-week Titration Kit for AUSTEDO® (deutetrabenazine) Tablets
https://www.tevausa.com/news-and-media/press-releases/tevas-new-real-world-evidence-presented-at-the-2024-aan-annual-meeting-confirms-eff...
katrina4384
Apr 19, 20247 min read
Help 4 HD is Coming to HOUSTON!
On April 27th, Help 4 HD International will host our first in-person HIPE education event for 2024. We have a great line-up with...
katrina4384
Apr 15, 20241 min read
"WE EXIST" - by Tanita Allen: Together we exist; together, we rise.
Welcome to the heart of “We Exist,” a compelling autobiography and memoir penned by Tanita Allen. Experience a journey that goes beyond...
katrina4384
Mar 26, 20241 min read
21 with Juvenile Huntington's disease: An adult, not a Child; feeling stuck in a unique and difficult place.
Hi, I’m Ashley Harmon. I am 21 and have Juvenile Onset Huntington’s Disease. I am an adult, not a child, but yet, in many ways, I feel...
katrina4384
Mar 18, 20243 min read
katie8288
Mar 12, 20240 min read
CEO/President of Help 4 HD International, Katie Jackson, Speaks to Sage Rx About Huntington's Disease.
This link will take you to a video of Katie and her daughter, Madison, who are talking about the impacts of HD and what they hope to see...
katrina4384
Mar 5, 20241 min read
Announcing a New Support Group Style with Help 4 HD - Stay Connected
People in our community have reached out to Help 4 HD requesting a different type of support, and we are excited to announce that we have...
katrina4384
Feb 19, 20242 min read
HDYO Brings Back the North American CAMP for Young People Impacted by HD!
HDYO is hosting its 6th North American HD Young Person Camp on August 11-15 from Camp St Charles in Maryland. The camp offers young...
katrina4384
Feb 7, 20241 min read
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