What should I do before I test?
What Should I do before I test for Huntington’s disease? Katie Jackson: Our next question is for Lisa, what should I do before finding...
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katie8288
- Aug 14, 2020
- 1 min
Can a child inherite JHD from their mother?
Katrina Hamel: So, the next question is for Dr. Wheelock. Can JHD be given to child by their mother. We hear this debate inside of the...
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katie8288
- Aug 7, 2020
- 3 min
If both parents are HD positive, what are the chances of their children inheriting HD?
Katie: Our next question is for Mara, if two people who have HD, so they're HD positive, have a child, what is the genetic chances of...
770 views1 comment
katie8288
- Jul 31, 2020
- 5 min
Cognitive Impairment
Katie Jackson: Hello, everyone, and welcome back to another episode of Help4HDTV. I am Katie Jackson and Katrina Hamel, and I have an...
215 views0 comments
katie8288
- Jul 24, 2020
- 3 min
Can I test for Huntington's disease from home?
Katie Jackson: This next question is for Mara. I have been hearing about testing for HD at home. I am at risk and interested in this...
200 views0 comments
Michael Sabado
- Jul 17, 2020
- 6 min
What if I am denied predictive testing?
Watch Episode 14 Now! Katrina Hamel: Hi everyone and thank you so much to our panelists. It's so good to see you all. The first question...
316 views0 comments
katie8288
- Jul 2, 2020
- 3 min
Gastrointestinal and Urological Issues in HD
Katie: This next question is for Miss Tempkin. My loved one must go to the bathroom a lot but does not really go and he think he has to....
834 views0 comments
katie8288
- Jun 26, 2020
- 3 min
HIPE Virtual July 11, Genetics
] Katie Jackson: Hey everyone and welcome back to another episode of Help 4 HDTV. Today, we are talking about HIPE round two. We thought...
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katie8288
- Jun 19, 2020
- 3 min
What is Apraxia? What is Apathy?
Katrina: This is a two part question. What is a apraxia and what is apathy? That's the first part. The second part is are there good...
344 views0 comments
katie8288
- Jun 19, 2020
- 3 min
uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial ( Press Release uniQure)
uniQure Announces First Two Patients Treated in Phase I/II Clinical Trial of AMT-130 for the Treatment of Huntington’s Disease ~...
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katie8288
- Jun 12, 2020
- 5 min
Talking to Children About Huntington's Disease
Katrina: For Lisa Mooney, Lisa how do I talk to my children about them being at risk? Lisa Mooney: This is a really good question. I...
266 views1 comment
katie8288
- May 29, 2020
- 1 min
What is Palliative Care?
Watch on YouTube Katie: Alright. Our next question is for Dr. Frank. Sam, what is palliative care? Dr. Sam Frank: First let me just say...
655 views
katie8288
- May 22, 2020
- 2 min
Help 4 HD Gives Free Medical I.D. Cards to HD Families
To Receive A Free HD I.D. Card Please Click HERE Katie Jackson: Hello everyone, and welcome back to another episode of Help 4 HDTV. Today...
1,155 views1 comment
katie8288
- May 20, 2020
- 3 min
Living with Huntington's Disease: One woman's journey
(BPT) - When Ashley Fajardo tested positive for the Huntington's disease gene at 18 years old, she was devastated but not surprised....
1,620 views1 comment
katie8288
- May 14, 2020
- 3 min
HD Awareness Window Decal Free Giveaway for HD Awareness Month
Katie Jackson: Hi everyone, and welcome back to another episode of Help 4 HD TV. Today we are going to talk about a program we are going...
1,016 views1 comment
katie8288
- May 8, 2020
- 4 min
HIPE VIRTUAL EXPERT PANEL ANSWERS QUESTION ABOUT NOT BEING ABLE TO VISIT LOVED ONE IN CARE FACILITY
Katrina Hamel: What can I say to my spouse who is in a longterm care facility as to why I can not visit him because of COVID-19. I can...
512 views0 comments
katie8288
- Apr 23, 2020
- 5 min
Help 4 HD TV Episode 5-Placement
Katie Jackson: Hello, and welcome back to another episode of Help 4 HDTV. The once a week during quarantine, Katrina and I put makeup on....
440 views0 comments
Michael Sabado
- Apr 20, 2020
- 4 min
Update from Roche
Dear global HD patient community, Today we are pleased to announce that worldwide recruitment has been completed for the Phase III...
703 views0 comments
Michael Sabado
- Apr 17, 2020
- 6 min
Help 4 HD TV Episode 4 - Resources
Katie Jackson: Hello everyone and welcome back to another episode of Help 4 HD TV. Today we are going to be talking about three resources...
257 views0 comments
Michael Sabado
- Apr 10, 2020
- 5 min
Help 4 HD TV Episode 3 - Virtual HIPE
Submit a question online: https://www.surveymonkey.com/r/virtualhipe Register for the May 2, 2020 event: https://www.help4hd.org/events-1...
215 views0 comments