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Understanding Apathy Vs. Depression in Huntington's Disease
In a recent discussion, Dr. Karen Anderson provided valuable insights into the experiences of individuals affected by Huntington's...
katie8288
Mar 16, 20252 min read


Understanding Testing for Huntington’s Disease in Children
In a recent insightful conversation, Dr. Duffy addressed a pressing concern regarding the testing of children for Huntington’s Disease...
katie8288
Mar 10, 20252 min read


Love Knows No Bounds: Navigating HD Together, Part 2
In a recent forum, three medical professionals came together to address pressing questions submitted by the Huntington's Disease...
katrina4384
Feb 28, 20254 min read


Love Knows No Bounds: Navigating HD Together, Part 1
Love Knows No Bounds: Navigating HD Together - A Deeper Dive Communication and Care: Walking the Path Together Lisa Mooney's Question:...
katie8288
Feb 23, 20253 min read


Who Will Tell Your Story...Make it YOU
Who will tell your story? You have lived an important life, and your experiences hold valuable lessons for future generations. By sharing...
katie8288
Feb 16, 20254 min read


Creating Meaningful Connections: Crafting a Support Network for Your Final Days. Part II
Reflections for the Final Days of Life: As you think about this important time, here are some gentle questions that might help you...
katie8288
Feb 9, 20252 min read


A Helpful Template to Guide You in Submitting Your Public Response to CMS
We understand that navigating the CMS public comment portal can be challenging and may not fully meet accessibility standards. To assist...
katie8288
Feb 6, 202516 min read


Creating Meaningful Connections: Crafting a Support Network for Your Last Days. Part I
What do you envision the last phase of your life to be like? (We will explore this in more detail shortly.) How would you like to handle...
katie8288
Feb 2, 20252 min read


Love Knows No Bounds ~ Virtual HIPE
We are EXCITED to be right around the corner from the first Help 4 HD event of 2025! On February 1st, from 8:00 AM to 12:35 PM (Pacific...
katrina4384
Jan 29, 20252 min read


Katie Jackson's Presentation at the FDA's Patient Listening Session on Gene Therapy
My name is Katie Jackson, CEO of Help 4 HD International and a Huntington's disease family member. My husband passed away from HD five...
katie8288
Jan 19, 20253 min read


Help 4 HD Family Relief Fund Gives $113,505 in Relief to Families in Need Impacted by HD/JHD in 2024
Today, we’re excited to share some updates about the Help for HD Family Relief Fund and the amazing strides we've made over the years....
katie8288
Jan 12, 20253 min read


Bloopy the Alien Learns about Huntington's Disease: by 12-year-old Emma Wajswasser
December 11, 2024 — Toronto, Ontario, Canada Most people have never heard of Huntington’s disease. This lack of awareness means people...
katrina4384
Dec 22, 20242 min read


Quick Overview of Seizures in JoHD at Help 4 HD Symposium:
The focus of this discussion was to provide you with the right vocabulary and tools to communicate effectively with your physicians about...
katrina4384
Dec 15, 20242 min read


katrina4384
Dec 11, 20240 min read


Holiday gift-giving ideas for someone with advanced HD
When it comes to gift-giving for the holidays, finding the perfect present for someone in the advanced stages of Huntington's disease...
katrina4384
Dec 8, 20243 min read


katrina4384
Dec 2, 20240 min read


Help 4 HD ~ Help 4 the Holidays
Our annual Help 4 the Holiday food program is OPEN! Click here to apply: https://www.help4hd.org/events-1/december-help-4-the-holidays-fo...
katrina4384
Dec 1, 20241 min read


Questions to consider when looking for a care home.
Placement comes with a ton of emotion. Try to remember never to promise your loved one that you will or will not place them into a...
katrina4384
Nov 24, 20246 min read


Who am I? PT. 2
As I got older, I saw more and more how HD impacted me too. As a pre-teen, grabbing cash from his wallet while he slept all afternoon and...
katrina4384
Nov 17, 20246 min read


Wave received supportive initial feedback from FDA on WVE-003. FDA also granted WVE-003 Orphan Drug Designation.
November 12, 2024 Achieved first-ever RNA editing in humans in RestorAATion-2 trial of WVE-006 (GalNAc-AIMer) in alpha-1 antitrypsin...
katie8288
Nov 13, 202411 min read
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