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Bloopy the Alien Learns about Huntington's Disease: by 12-year-old Emma Wajswasser
December 11, 2024 — Toronto, Ontario, Canada Most people have never heard of Huntington’s disease. This lack of awareness means people...
katrina4384
Dec 22, 20242 min read
Quick Overview of Seizures in JoHD at Help 4 HD Symposium:
The focus of this discussion was to provide you with the right vocabulary and tools to communicate effectively with your physicians about...
katrina4384
Dec 15, 20242 min read
katrina4384
Dec 11, 20240 min read
Holiday gift-giving ideas for someone with advanced HD
When it comes to gift-giving for the holidays, finding the perfect present for someone in the advanced stages of Huntington's disease...
katrina4384
Dec 8, 20243 min read
katrina4384
Dec 2, 20240 min read
Help 4 HD ~ Help 4 the Holidays
Our annual Help 4 the Holiday food program is OPEN! Click here to apply: https://www.help4hd.org/events-1/december-help-4-the-holidays-fo...
katrina4384
Dec 1, 20241 min read
Questions to consider when looking for a care home.
Placement comes with a ton of emotion. Try to remember never to promise your loved one that you will or will not place them into a...
katrina4384
Nov 24, 20246 min read
Who am I? PT. 2
As I got older, I saw more and more how HD impacted me too. As a pre-teen, grabbing cash from his wallet while he slept all afternoon and...
katrina4384
Nov 17, 20246 min read
Wave received supportive initial feedback from FDA on WVE-003. FDA also granted WVE-003 Orphan Drug Designation.
November 12, 2024 Achieved first-ever RNA editing in humans in RestorAATion-2 trial of WVE-006 (GalNAc-AIMer) in alpha-1 antitrypsin...
katie8288
Nov 13, 202411 min read
Who am I? PT. 1
Figuring out who you are and who you want to be is difficult for any kid. Are you a person who plays sports? Do you enjoy art, music,...
katrina4384
Nov 10, 20243 min read
katie8288
Nov 8, 20240 min read
Help 4 HD's Help 4 the Holidays is OPEN
Apply here: https://www.help4hd.org/events-1/november-help-4-the-holiday-food-program-1-1/form
katrina4384
Nov 3, 20241 min read
Navigating Grief with a Side of Dark Humor
Let me tell you, grief is a wild ride—a bizarre mix of emotions that can leave you feeling as if you're constantly stuck in a bad movie,...
katrina4384
Oct 27, 20242 min read
What I've learned - an essay by Sharon Quigley
For so long my life was bound to someone else. When I married, I vowed to love another “in sickness and in health”. What they don’t tell...
katrina4384
Oct 20, 20243 min read
Myth Buster: Do People with Huntington's Disease Have a Lower Risk of Cancer?
Help 4 HD HIPE Virtual ~ Myth or Fact Does having HD decrease your risk of cancer? The Claim: People with Huntington's disease have a...
katie8288
Oct 13, 20242 min read
Myth or Fact: More men than women have HD
This is a persistent myth that has been circulating for decades. However, the truth is that HD affects men and women equally. The...
katie8288
Oct 6, 20241 min read
Myth or Fact: Most people die from Huntington's disease because of starvation.
Myth or Fact: Most people die from Huntington's disease because of starvation. While starvation can be a factor in some cases, it's not...
katie8288
Sep 29, 20242 min read
katie8288
Sep 26, 20240 min read
Myth or Fact: Alcohol Makes Chorea Worse in Huntington's Disease
The question of whether alcohol makes chorea worse is a complex one, and the answer isn't as straightforward as we might hope. The HIPE...
katie8288
Sep 22, 20242 min read
When Hope Expires and Belief Steps In
Hope, in its essence, is a passive emotion. It's the expectation that someone else - researchers, doctors, or even fate - will make a...
katie8288
Sep 14, 20243 min read
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