Are you taking the right medications based on your unique DNA?
Are you aware that genetics are more than just lineage? Within your family, you may have very different experiences with medications or...
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katrina4384
May 202 min
Jamie Holloway ~ Help 4 HD's newest team member!
When you first meet Jamie, you will notice her warmth, smile, and genuine interest in those around her. We are excited about what this...
207 views0 comments
katrina4384
May 71 min
Forbes Features Tanita Allen in Why Self-Advocacy Can Help You Become an Invaluable Collaborator.
As Tanita Allen, author of the book We Exist, explained in a recent conversation, “We all need to be self-advocates, because our society...
163 views0 comments
katrina4384
Apr 197 min
Teva’s New Real-World Evidence Confirms Effectiveness and Patient Satisfaction for HD Chorea with the 4-week Titration Kit for AUSTEDO® (deutetrabenazine) Tablets
https://www.tevausa.com/news-and-media/press-releases/tevas-new-real-world-evidence-presented-at-the-2024-aan-annual-meeting-confirms-eff...
168 views0 comments
katrina4384
Apr 151 min
Help 4 HD is Coming to HOUSTON!
On April 27th, Help 4 HD International will host our first in-person HIPE education event for 2024. We have a great line-up with...
114 views0 comments
katrina4384
Mar 261 min
"WE EXIST" - by Tanita Allen: Together we exist; together, we rise.
Welcome to the heart of “We Exist,” a compelling autobiography and memoir penned by Tanita Allen. Experience a journey that goes beyond...
219 views0 comments
katrina4384
Mar 183 min
21 with Juvenile Huntington's disease: An adult, not a Child; feeling stuck in a unique and difficult place.
Hi, I’m Ashley Harmon. I am 21 and have Juvenile Onset Huntington’s Disease. I am an adult, not a child, but yet, in many ways, I feel...
634 views0 comments
katrina4384
Mar 51 min
CEO/President of Help 4 HD International, Katie Jackson, Speaks to Sage Rx About Huntington's Disease.
This link will take you to a video of Katie and her daughter, Madison, who are talking about the impacts of HD and what they hope to see...
435 views0 comments
katrina4384
Feb 192 min
Announcing a New Support Group Style with Help 4 HD - Stay Connected
People in our community have reached out to Help 4 HD requesting a different type of support, and we are excited to announce that we have...
396 views0 comments
katrina4384
Feb 71 min
HDYO Brings Back the North American CAMP for Young People Impacted by HD!
HDYO is hosting its 6th North American HD Young Person Camp on August 11-15 from Camp St Charles in Maryland. The camp offers young...
202 views0 comments
katie8288
Jan 263 min
HD Community Letter from Prilenia
January 26, 2024 Dear Huntington’s Disease Community, We hope 2024 is off to a great start for you and your loved ones. To build on...
252 views0 comments
katie8288
Jan 111 min
European Medicines Agency (EMA) Greenlights Mitochon Pharmaceuticals to Initiate Phase I/IIa Biomarker Study in Neurodegenerative Diseases
BLUE BELL, Pa.--(BUSINESS WIRE)--Mitochon Pharmaceuticals today announced that it was awarded approval from EMA to begin enrollment for a...
250 views0 comments
katie8288
Dec 19, 20233 min
HD Deserves a Voice; Fill Out the FDA Accelerating Access to Critical Therapies Public Docket
Accelerating Access to Critical Therapies for ALS Act – ACT for ALS - Action Plan for Rare Neurodegenerative Diseases including...
570 views2 comments
katie8288
Dec 19, 20232 min
uniQure Announces Update on Phase I/II Clinical Trials of AMT-130 Gene Therapy for the Treatment of Huntington’s Disease
Dear Huntington’s Disease Patient Organization Leaders, This morning, uniQure issued a press release announcing interim data from 39...
210 views0 comments
katrina4384
Dec 4, 20231 min
Patient Assistance Programs for INGREZZA
Navigating Insurance Approval & Patient Financial Assistance For More Information on Financial Assistance Programs For INGREZZA, Please...
248 views0 comments
katrina4384
Nov 20, 20230 min
204 views0 comments
katrina4384
Nov 13, 20231 min
Help 4 HD's HD Resource Database: Phase One
Help 4 HD has created the HD Resource database to help those impacted by Huntington's disease and Juvenile onset Huntington's disease....
274 views0 comments
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