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Love Knows No Bounds ~ Virtual HIPE
We are EXCITED to be right around the corner from the first Help 4 HD event of 2025! On February 1st, from 8:00 AM to 12:35 PM (Pacific...
katrina4384
Jan 29, 20252 min read


Katie Jackson's Presentation at the FDA's Patient Listening Session on Gene Therapy
My name is Katie Jackson, CEO of Help 4 HD International and a Huntington's disease family member. My husband passed away from HD five...
katie8288
Jan 19, 20253 min read


Help 4 HD Family Relief Fund Gives $113,505 in Relief to Families in Need Impacted by HD/JHD in 2024
Today, we’re excited to share some updates about the Help for HD Family Relief Fund and the amazing strides we've made over the years....
katie8288
Jan 12, 20253 min read


Bloopy the Alien Learns about Huntington's Disease: by 12-year-old Emma Wajswasser
December 11, 2024 — Toronto, Ontario, Canada Most people have never heard of Huntington’s disease. This lack of awareness means people...
katrina4384
Dec 22, 20242 min read


Quick Overview of Seizures in JoHD at Help 4 HD Symposium:
The focus of this discussion was to provide you with the right vocabulary and tools to communicate effectively with your physicians about...
katrina4384
Dec 15, 20242 min read


katrina4384
Dec 11, 20240 min read


Holiday gift-giving ideas for someone with advanced HD
When it comes to gift-giving for the holidays, finding the perfect present for someone in the advanced stages of Huntington's disease...
katrina4384
Dec 8, 20243 min read


katrina4384
Dec 2, 20240 min read


Help 4 HD ~ Help 4 the Holidays
Our annual Help 4 the Holiday food program is OPEN! Click here to apply: https://www.help4hd.org/events-1/december-help-4-the-holidays-fo...
katrina4384
Dec 1, 20241 min read


Questions to consider when looking for a care home.
Placement comes with a ton of emotion. Try to remember never to promise your loved one that you will or will not place them into a...
katrina4384
Nov 24, 20246 min read


Who am I? PT. 2
As I got older, I saw more and more how HD impacted me too. As a pre-teen, grabbing cash from his wallet while he slept all afternoon and...
katrina4384
Nov 17, 20246 min read


Wave received supportive initial feedback from FDA on WVE-003. FDA also granted WVE-003 Orphan Drug Designation.
November 12, 2024 Achieved first-ever RNA editing in humans in RestorAATion-2 trial of WVE-006 (GalNAc-AIMer) in alpha-1 antitrypsin...
katie8288
Nov 13, 202411 min read


Who am I? PT. 1
Figuring out who you are and who you want to be is difficult for any kid. Are you a person who plays sports? Do you enjoy art, music,...
katrina4384
Nov 10, 20243 min read


katie8288
Nov 8, 20240 min read


Help 4 HD's Help 4 the Holidays is OPEN
Apply here: https://www.help4hd.org/events-1/november-help-4-the-holiday-food-program-1-1/form
katrina4384
Nov 3, 20241 min read


Navigating Grief with a Side of Dark Humor
Let me tell you, grief is a wild ride—a bizarre mix of emotions that can leave you feeling as if you're constantly stuck in a bad movie,...
katrina4384
Oct 27, 20242 min read


What I've learned - an essay by Sharon Quigley
For so long my life was bound to someone else. When I married, I vowed to love another “in sickness and in health”. What they don’t tell...
katrina4384
Oct 20, 20243 min read


Myth Buster: Do People with Huntington's Disease Have a Lower Risk of Cancer?
Help 4 HD HIPE Virtual ~ Myth or Fact Does having HD decrease your risk of cancer? The Claim: People with Huntington's disease have a...
katie8288
Oct 13, 20242 min read


Myth or Fact: More men than women have HD
This is a persistent myth that has been circulating for decades. However, the truth is that HD affects men and women equally. The...
katie8288
Oct 6, 20241 min read


Myth or Fact: Most people die from Huntington's disease because of starvation.
Myth or Fact: Most people die from Huntington's disease because of starvation. While starvation can be a factor in some cases, it's not...
katie8288
Sep 29, 20242 min read
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