One thing that families living with HD/JHD learn fairly quickly is resilience. As a grassroots nonprofit run by family members living...

It happens out of the blue. There you are, going along with what appears to be a somewhat normal moment in time, when suddenly the...

Kids were a big focus for part of the questions asked of the HIPE panel in Sacramento, at our Highly Interactive 📷Participant Education...

What gives? Suddenly, your loved one with Huntington’s disease is making no sense at all; his or her behavior is totally off the wall....

“December 15th will be two years since we lost Cory,” says Stacey Sargent, who lost her son to JHD when he was 21. “Every holiday and...

It started with a post on Facebook. Ashley Yerby wrote, “My mom has HD and has been in the nursing home for a little over a year. She is...

Sue Gamble is the caregiver for her brother, Ray Glasser. He has been in Lakeland Skilled Nursing and Rehabilitation Center in Angola,...

Katie Jackson is a strong advocate for the Huntington’s and Juvenile Huntington’s disease community and is president/CEO of Help 4 HD...

When it comes to Huntington’s and Juvenile Huntington’s disease, guilt can play a huge factor in the lives of those who test negative and...

Alan Pfeffer is a retired attorney in New York state whose first wife died from Huntington’s disease (H📷D) and whose 37-year-old...

Talking to kids about HD can be one of the toughest parts of the Huntington’s disease journey. It’s one thing to explain that Mom or Dad...

Often, I hear the pleas of caregivers saying, “I feel overwhelmed.” “My HD loved one does not qualify.” “I hate my life.” “I want...

“We are excited this year about our programs we will be launching in the month of May for HD 📷Awareness Month,” says Katie Jackson,...

Let’s talk about one of the “untalked about” symptoms of Huntington’s disease: gastrointestinal (GI) issues. According to Dr. LaVonne...

May is the month that inspired my caregiver’s book, I Fight for Understanding. May is Huntington’s Awareness month!! As a way to give...

“Sometimes superheroes reside in the hearts of small children fighting big battles.” – Author Unknown Any parents who have or had a child...

My Story In January of 2009, I started caring for my mom in my home, after years of her being homeless, ill, unreachable and 3,000 miles...

Of the troubling behavioral changes that occur with the onset of Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD), and...

Filing for disability and navigating the system of SSDI, SSI, Medicare, and Medicaid can be both challenging and frustrating. It’s a...

So, this is hard for me to write about. Like really, really hard. My fingers literally try to curl up every time I go to hit a letter on...