HIPE VIRTUAL EXPERT PANEL ANSWERS QUESTION ABOUT NOT BEING ABLE TO VISIT LOVED ONE IN CARE FACILITY
Katrina Hamel: What can I say to my spouse who is in a longterm care facility as to why I can not visit him because of COVID-19. I can...
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katie8288
Apr 23, 20205 min
Help 4 HD TV Episode 5-Placement
Katie Jackson: Hello, and welcome back to another episode of Help 4 HDTV. The once a week during quarantine, Katrina and I put makeup on....
442 views0 comments
Michael Sabado
Apr 20, 20204 min
Update from Roche
Dear global HD patient community, Today we are pleased to announce that worldwide recruitment has been completed for the Phase III...
717 views0 comments
Michael Sabado
Apr 17, 20206 min
Help 4 HD TV Episode 4 - Resources
Katie Jackson: Hello everyone and welcome back to another episode of Help 4 HD TV. Today we are going to be talking about three resources...
276 views0 comments
Michael Sabado
Apr 10, 20205 min
Help 4 HD TV Episode 3 - Virtual HIPE
Submit a question online: https://www.surveymonkey.com/r/virtualhipe Register for the May 2, 2020 event: https://www.help4hd.org/events-1...
242 views0 comments
Michael Sabado
Apr 3, 20207 min
Help 4 HD Opens Relief Fund for COVID-19 HD Patient Assistance
Katie Jackson: Hello everyone and welcome back to Help 4HD TV. Today we are going to be talking about our relief fund. We are getting...
381 views1 comment
katie8288
Mar 27, 20202 min
Help 4 HD TV - Episode 1
Katie Jackson: Hi everyone, and welcome to the very first episode of Help 4 HD TV. We all know with COVID 19 that we are feeling even...
86 views0 comments
Michael Sabado
Mar 17, 20201 min
Changes at Help 4 HD due to COVID-19 (coronavirus)
A message from Help 4 HD International's CEO, Katie Jackson. This message will be transcribed and available here shortly.
176 views0 comments
Michael Sabado
Mar 10, 20201 min
HIPE Day Sacramento, Postponed
March 10, 2020 To Our HD Community, It is with great regret and disappointment I write you to announce that Help 4 HD International HIPE,...
19 views0 comments
Michael Sabado
Dec 30, 20193 min
WAVE PRECISION-HD2 Community Update
December 30, 2019 Dear global HD community, Today we announced encouraging topline results from PRECISION-HD2, our ongoing Phase 1b/2a...
387 views0 comments
Michael Sabado
Dec 3, 20191 min
Help 4 HD and Meg's Fight 4 a Cure Holiday JHD Program
Apply for this program here: https://www.surveymonkey.com/r/JHDHoliday
12 views0 comments
Michael Sabado
Nov 14, 20193 min
Huntington Study Group Announces Initiation of Phase III Clinical Study of Valbenazine
For Immediate Release: November 14, 2019 Huntington Study Group Huntington Study Group Announces Initiation of Phase III Clinical Study...
25 views0 comments
Michael Sabado
Oct 17, 20192 min
A Family Story
When Chrissy Land tested positive for Huntington’s disease over two decades ago, she had her entire life ahead of her. She was living in...
360 views0 comments
Michael Sabado
Oct 16, 20192 min
Update on the Phase III GENERATION HD1 study
14 October 2019 Update on the Phase III GENERATION HD1 study Dear global HD patient community, Today we are pleased to announce that we...
56 views0 comments
Michael Sabado
Aug 21, 20191 min
New JHD Research Published In American Academy of Neurology Journal
Two new studies were published in Neurology ®, the official journal of the American Academy of Neurology.
245 views0 comments
Sharon McClellan Thomason
Jun 3, 20194 min
IACP Conference a Huge Success
A shocking video that went viral in September spurred the Huntington’s Disease community into action. The ten-minute video showed a young...
40 views0 comments
Sharon McClellan Thomason
Jun 3, 20195 min
Help 4 HD International Hosts Inaugural JHD Kids Walk
“Several years ago Jacey Mukka reached out to me to ask me if I could save her little sister, Karli,” says Dr. Jan Nolta, researcher at...
52 views0 comments
Sharon McClellan Thomason
Jun 3, 20198 min
The Amazing, Astounding, Awesome, Super Hero Cameron Brown
Bright brown eyes and a big, engaging smile belie the fact that Cameron Brown, 13, struggles daily with the pain and suffering of...
35 views1 comment
Sharon McClellan Thomason
Jun 3, 20197 min
Haunted by Ghosts of Huntington’s
Huntington’s disease has a reputation for being a “rare” disease. Statistics say that only about 30,000 people in the United States are...
168 views3 comments
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