Sharon McClellan Thomason
Gastrointestinal Symptoms in Huntington’s Disease
Let’s talk about one of the “untalked about” symptoms of Huntington’s disease: gastrointestinal (GI) issues. According to Dr. LaVonne...
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Sharon McClellan Thomason
- Jun 3, 2019
- 2 min
Huntington’s Awareness Month, Here We Come!
May is the month that inspired my caregiver’s book, I Fight for Understanding. May is Huntington’s Awareness month!! As a way to give...
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Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Navigating Juvenile Huntington’s Disease
“Sometimes superheroes reside in the hearts of small children fighting big battles.” – Author Unknown Any parents who have or had a child...
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Sharon McClellan Thomason
- Jun 3, 2019
- 8 min
Placing a Loved One with Huntington’s Disease
My Story In January of 2009, I started caring for my mom in my home, after years of her being homeless, ill, unreachable and 3,000 miles...
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Sharon McClellan Thomason
- Jun 3, 2019
- 8 min
Hypersexuality and Huntington’s Disease
Of the troubling behavioral changes that occur with the onset of Huntington’s disease (HD) and Juvenile Huntington’s disease (JHD), and...
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Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Huntington’s Disease: Filing for Disability
Filing for disability and navigating the system of SSDI, SSI, Medicare, and Medicaid can be both challenging and frustrating. It’s a...
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Sharon McClellan Thomason
- Jun 3, 2019
- 6 min
I Never Thought It Would Get Better, Either
So, this is hard for me to write about. Like really, really hard. My fingers literally try to curl up every time I go to hit a letter on...
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Sharon McClellan Thomason
- Jun 3, 2019
- 2 min
For People With HD/JHD & Their Caregivers
Figuring out what to get someone who has Huntington’s disease can become more and more difficult as the disease progresses. As promised,...
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Sharon McClellan Thomason
- May 29, 2019
- 1 min
You Pay the Higher Cost
Caregivers of people with Huntington’s disease often feel lonely, even when they’re with their loved ones. Sharon Quigley uses poetry to...
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Sharon McClellan Thomason
- May 28, 2019
- 2 min
Surviving the Holidays
Surviving the Holidays 📷 by Lauren Holder Happy holidays! ‘Tis the season to be stressed. At least that’s how it feels for me, so I...
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Sharon McClellan Thomason
- May 28, 2019
- 2 min
Holiday Gift Ideas
For People With HD/JHD & Their Caregivers By Lauren Holder Figuring out what to get someone who has Huntington’s disease can become more...
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Sharon McClellan Thomason
- May 28, 2019
- 6 min
First HD patients enrolled in Roche/Genentech studies
Roche/Genentech announced today that they have enrolled the first patients in the HD Natural History and Phase III GENERATION HD1...
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Michael Sabado
- May 28, 2019
- 3 min
Roche Phase III GENERATION HD1 Study: Announcement of First European Countries/Expected Sites (Spain
The purpose of this Phase III study is to evaluate the efficacy and safety of RG6042 treatment for manifest Huntington’s disease. This...
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Michael Sabado
- May 18, 2019
- 1 min
First Responders Video & Brochure
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Michael Sabado
- May 18, 2019
- 2 min
WAVE PRECISION-HD Timing Update
Dear global HD community, Today we are sharing an update on the timing of the topline data readout from our ongoing PRECISION-HD program,...
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Michael Sabado
- May 18, 2019
- 4 min
Amendment to the RG6042 Phase III GENERATION HD1 study design
21 March 2019 Amendment to the RG6042 Phase III GENERATION HD1 study design Dear global HD patient community, Today we are sharing an...
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