In a recent forum, three medical professionals came together to address pressing questions submitted by the Huntington's Disease...

Love Knows No Bounds: Navigating HD Together - A Deeper Dive Communication and Care: Walking the Path Together Lisa Mooney's Question:...

Who will tell your story? You have lived an important life, and your experiences hold valuable lessons for future generations. By sharing...

Reflections for the Final Days of Life: As you think about this important time, here are some gentle questions that might help you...

We understand that navigating the CMS public comment portal can be challenging and may not fully meet accessibility standards. To assist...

What do you envision the last phase of your life to be like? (We will explore this in more detail shortly.) How would you like to handle...

We are EXCITED to be right around the corner from the first Help 4 HD event of 2025! On February 1st, from 8:00 AM to 12:35 PM (Pacific...

My name is Katie Jackson, CEO of Help 4 HD International and a Huntington's disease family member. My husband passed away from HD five...

Today, we’re excited to share some updates about the Help for HD Family Relief Fund and the amazing strides we've made over the years....

December 11, 2024 — Toronto, Ontario, Canada Most people have never heard of Huntington’s disease. This lack of awareness means people...

The focus of this discussion was to provide you with the right vocabulary and tools to communicate effectively with your physicians about...

When it comes to gift-giving for the holidays, finding the perfect present for someone in the advanced stages of Huntington's disease...

Our annual Help 4 the Holiday food program is OPEN! Click here to apply: https://www.help4hd.org/events-1/december-help-4-the-holidays-fo...

Placement comes with a ton of emotion. Try to remember never to promise your loved one that you will or will not place them into a...

As I got older, I saw more and more how HD impacted me too. As a pre-teen, grabbing cash from his wallet while he slept all afternoon and...

November 12, 2024 Achieved first-ever RNA editing in humans in RestorAATion-2 trial of WVE-006 (GalNAc-AIMer) in alpha-1 antitrypsin...

Figuring out who you are and who you want to be is difficult for any kid. Are you a person who plays sports? Do you enjoy art, music,...