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Myth or Fact: People with Psychiatric Symptoms in Huntington's Disease Won't Have Involuntary Movement
One myth that recently caught our attention is the belief that individuals with psychiatric symptoms are less likely to experience chorea...
katie8288
Sep 8, 20242 min read
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An Update on Generation HD2 Enrollment and Study Status
5 September 2024 Update on GENERATION HD2 enrollment and study status Dear Huntington’s patient community leaders, We appreciate your...
katrina4384
Sep 6, 20242 min read
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Prilenia filed a European Marketing Authorization Application (MAA) with the EMA. What's next for the United States?
To learn more about this news and Pridopidine, please read our press release here: Prilenia’s Pridopidine for Huntington’s Disease...
katrina4384
Sep 3, 20241 min read
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Navigating Outbursts and Legal Trouble in Huntington's DiseaseÂ
Living with Huntington's Disease (HD) comes with a unique set of challenges, not just for those diagnosed but also for their families and...
katie8288
Aug 31, 20244 min read
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Navigating the Complexities of Huntington’s Disease: Insights from Dr. Sung on the Latest Clinical Trials
By Katie Jackson  As someone who has dedicated almost two decades now to Huntington's Disease (HD) advocacy, I’ve seen the HD landscape...
katie8288
Aug 24, 20243 min read
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Understanding CAG Variability and Its Impact on the HD Journey
By Katie Jackson, President and CEO of Help 4 HD International  When I first began advocating for the Huntington's disease (HD)...
katie8288
Aug 17, 20243 min read
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Understanding the Power of HD Community: A Conversation with Help 4 HD International and HDSA
Welcome to our latest blog post where we dive into an exciting initiative for the Huntington’s disease (HD) community—Power HD. Recently,...
katie8288
Aug 10, 20242 min read
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Interim data from the ongoing HD Gene TRX-1 and 2 clinical trials.
• A significant, dose-dependent, slowing in disease progression measured by cUHDRS was observed through 24 months in patients receiving...
katie8288
Jul 9, 20241 min read
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The "Jim-i-sphere" Concept
One day, I was sitting with my mom at the table. She expressed deep concern that my sweet daddy, Jim, was "'backsliding' into his old...
katrina4384
Jul 8, 20243 min read
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katie8288
Jun 20, 20240 min read
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Epilepsy in Pediatric-onset Huntington's Disease Survey.
In less than 15 minutes, you can participate in an anonymous survey as an adult (over the age of 21) caregiver of someone diagnosed with...
katrina4384
Jun 18, 20241 min read
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katrina4384
Jun 12, 20240 min read
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Sage Therapeutics Announces Topline Results from the Phase 2 SURVEYOR Study.
"The study met its primary endpoint, demonstrating a statistically significant difference as measured by the HD-Cognitive Assessment...
katrina4384
Jun 11, 20241 min read
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Are you taking the right medications based on your unique DNA?
Are you aware that genetics are more than just lineage? Within your family, you may have very different experiences with medications or...
katrina4384
Jun 10, 20241 min read
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Jamie Holloway ~ Help 4 HD's newest team member!
When you first meet Jamie, you will notice her warmth, smile, and genuine interest in those around her. We are excited about what this...
katrina4384
May 20, 20242 min read
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Forbes Features Tanita Allen in Why Self-Advocacy Can Help You Become an Invaluable Collaborator.
As Tanita Allen, author of the book We Exist, explained in a recent conversation, “We all need to be self-advocates, because our society...
katrina4384
May 7, 20241 min read
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Teva’s New Real-World Evidence Confirms Effectiveness and Patient Satisfaction for HD Chorea with the 4-week Titration Kit for AUSTEDO® (deutetrabenazine) Tablets
https://www.tevausa.com/news-and-media/press-releases/tevas-new-real-world-evidence-presented-at-the-2024-aan-annual-meeting-confirms-eff...
katrina4384
Apr 19, 20247 min read
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Help 4 HD is Coming to HOUSTON!
On April 27th, Help 4 HD International will host our first in-person HIPE education event for 2024. We have a great line-up with...
katrina4384
Apr 15, 20241 min read
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