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katie8288
Sep 26, 20240 min read
Myth or Fact: Alcohol Makes Chorea Worse in Huntington's Disease
The question of whether alcohol makes chorea worse is a complex one, and the answer isn't as straightforward as we might hope. The HIPE...
katie8288
Sep 22, 20242 min read
When Hope Expires and Belief Steps In
Hope, in its essence, is a passive emotion. It's the expectation that someone else - researchers, doctors, or even fate - will make a...
katie8288
Sep 14, 20243 min read
Myth or Fact: People with Psychiatric Symptoms in Huntington's Disease Won't Have Involuntary Movement
One myth that recently caught our attention is the belief that individuals with psychiatric symptoms are less likely to experience chorea...
katie8288
Sep 8, 20242 min read
An Update on Generation HD2 Enrollment and Study Status
5 September 2024 Update on GENERATION HD2 enrollment and study status Dear Huntington’s patient community leaders, We appreciate your...
katrina4384
Sep 6, 20242 min read
Prilenia filed a European Marketing Authorization Application (MAA) with the EMA. What's next for the United States?
To learn more about this news and Pridopidine, please read our press release here: Prilenia’s Pridopidine for Huntington’s Disease...
katrina4384
Sep 3, 20241 min read
Navigating Outbursts and Legal Trouble in Huntington's Disease
Living with Huntington's Disease (HD) comes with a unique set of challenges, not just for those diagnosed but also for their families and...
katie8288
Aug 31, 20244 min read
Navigating the Complexities of Huntington’s Disease: Insights from Dr. Sung on the Latest Clinical Trials
By Katie Jackson As someone who has dedicated almost two decades now to Huntington's Disease (HD) advocacy, I’ve seen the HD landscape...
katie8288
Aug 24, 20243 min read
Understanding CAG Variability and Its Impact on the HD Journey
By Katie Jackson, President and CEO of Help 4 HD International When I first began advocating for the Huntington's disease (HD)...
katie8288
Aug 17, 20243 min read
Understanding the Power of HD Community: A Conversation with Help 4 HD International and HDSA
Welcome to our latest blog post where we dive into an exciting initiative for the Huntington’s disease (HD) community—Power HD. Recently,...
katie8288
Aug 10, 20242 min read
Interim data from the ongoing HD Gene TRX-1 and 2 clinical trials.
• A significant, dose-dependent, slowing in disease progression measured by cUHDRS was observed through 24 months in patients receiving...
katie8288
Jul 9, 20241 min read
The "Jim-i-sphere" Concept
One day, I was sitting with my mom at the table. She expressed deep concern that my sweet daddy, Jim, was "'backsliding' into his old...
katrina4384
Jul 8, 20243 min read
Epilepsy in Pediatric-onset Huntington's Disease Survey.
In less than 15 minutes, you can participate in an anonymous survey as an adult (over the age of 21) caregiver of someone diagnosed with...
katrina4384
Jun 18, 20241 min read
katrina4384
Jun 12, 20240 min read
Sage Therapeutics Announces Topline Results from the Phase 2 SURVEYOR Study.
"The study met its primary endpoint, demonstrating a statistically significant difference as measured by the HD-Cognitive Assessment...
katrina4384
Jun 11, 20241 min read
Are you taking the right medications based on your unique DNA?
Are you aware that genetics are more than just lineage? Within your family, you may have very different experiences with medications or...
katrina4384
Jun 10, 20241 min read
Jamie Holloway ~ Help 4 HD's newest team member!
When you first meet Jamie, you will notice her warmth, smile, and genuine interest in those around her. We are excited about what this...
katrina4384
May 20, 20242 min read
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