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Neurocrine Biosciences Announces U.S. FDA Accepts New Drug Application for INGREZZA (valbenazine) Oral Granules Sprinkle Formation
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katie8288
- Aug 20, 2023
- 5 min
Understanding the Clinical Trial Process for Huntington's Disease Families
The clinical trial process is an essential part of the research journey, a critical step in bringing new treatments and therapies to our...
338 views0 comments
katie8288
- Jul 28, 2023
- 9 min
Help 4 HD International Exhibits and Presents at the Crisis Intervention Team International (CIT)
Help 4 HD International's LEEP program began in 2014 when Help 4 HD International exhibited at its first International Association of...
390 views1 comment
katrina4384
- Jul 16, 2023
- 2 min
Please stop saying that about HD...
1. So, this isn't quite on topic, but the one thing I'm tired of seeing..... I'm THRILLED Hollywood is recognizing HD, but my issue is...
279 views0 comments
katrina4384
- Jul 6, 2023
- 4 min
Testing, what to do first; words from the community.
We asked our social media followers, 'What is one thing you should do before getting tested?' the discussions were great! One of the very...
286 views0 comments
katrina4384
- Jun 28, 2023
- 3 min
We Asked, and the Community Answered.
We Asked, and the community Answered. When friends or the community ask how they can help, are you always at a loss for ideas? Let's...
341 views1 comment
katie8288
- Jun 21, 2023
- 5 min
PTC Therapeutics Shares Positive Interim Data from PIVOT-HD Clinical Trial
PTC Therapeutics Shares Positive Interim Data from PIVOT-HD Clinical Trial in Huntington's Disease Patients June 21, 2023 PDF Version -...
263 views0 comments
katie8288
- Jun 21, 2023
- 2 min
uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
Dear Huntington’s Disease Patient Organization Leaders, We are writing to let you know that this morning uniQure issued a press release...
252 views0 comments
katie8288
- Jun 8, 2023
- 2 min
Eyes, Ears, Nose, and Paws help Olivia, who lives with JoHD, find her forever partner
Olivia Eiger is a social teen, who recently celebrated her 17th birthday and is planning to commemorate both her birthday and going into...
385 views0 comments
katie8288
- May 26, 2023
- 8 min
HD Awareness Month 2023, Some Patient/Family Response.
What do you wish healthcare workers were more mindful of with HD patients? Community Response: · I wish they were educated about...
325 views1 comment
katie8288
- May 23, 2023
- 1 min
Help 4 HD is featured on Movement Disorder Policy Coalition
https://www.movementdisorderspolicy.org/news/2023/5/11/help-4-hd
241 views0 comments
katie8288
- May 16, 2023
- 0 min
421 views0 comments
katie8288
- May 8, 2023
- 1 min
An HD Awareness Message from Charles Fisher
Hello, my name is Charles Fisher. This is my story about Huntington's disease. I got made fun of when I was younger, and I still get...
290 views0 comments
katie8288
- May 1, 2023
- 6 min
What has your family endured due to a lack of awareness about HD? The community responds.
• We planned a friend trip to Vegas after my husband’s diagnosis. We all sat down at a poker table to play. The whole table was just our...
309 views7 comments
katie8288
- Apr 25, 2023
- 4 min
HD community letter from Prilenia about the topline results from the PROOF-HD clinical trial.
April 25, 2023 Dear Huntington’s Disease Community, We are reaching out to provide an important update about the topline results from our...
252 views0 comments
katie8288
- Apr 17, 2023
- 4 min
I am an adult living with JoHD—an interview with Ashley.
I am an adult living with JoHD—an interview with Ashley. We want to thank Ashely for doing this short interview with Help 4 HD. It helped...
211 views0 comments
katie8288
- Apr 4, 2023
- 0 min
406 views0 comments
katie8288
- Mar 28, 2023
- 0 min
534 views0 comments
katrina4384
- Mar 13, 2023
- 1 min
Community Questions About AUSTEDO XR
Community Questions that Help 4 HD Received After our Virtual HIPE on February 25th AUSTEDO XR The answers to these questions were found...
371 views0 comments
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