Love Knows No Bounds ~ Virtual HIPE
- katrina4384
- Jan 29, 2025
- 2 min read
We are EXCITED to be right around the corner from the first Help 4 HD event of 2025!
On February 1st, from 8:00 AM to 12:35 PM (Pacific Time), Help 4 HD will host this very important event live on Zoom and Facebook.
The theme, Love Knows No Bounds, means that there are many ways that our community expresses love, intimacy, support, etc., and we want to talk about them. Sometimes, this topic brings up questions that are hard to talk about. People may feel shame, embarrassment, fear, loss, grief, and many other emotions. We will be diving into different community stories and deidentified questions submitted by community members, and we'll be talking about some great topics that everyone will likely be able to relate to!
We will hear from members of the community who will share their experiences talking to the FDA and updates from some of our sponsors!
If you would like to join us on Zoom, please register here (this will close off Thursday morning, 1/30): Event Details & Registration | Help 4 HD Internatio
If you would like to watch from Facebook, please join us here: (20+) Facebook
If you would like to access our app, you can do that here: https://bit.ly/h4hdevents You do not have to download this application; it will simply pull up through your browser. On the app, you will find the schedule and speaker bios, submit for a giveaway, and find resources from sponsors and partners.
** If you received a #Help4HDSwag box, please take a picture of your Swag and yourselves and post using the hashtag (#Help4HDSwag) so we can spread awareness, love, community, and connection.
A HUGE thank you to our 2025 HIPE Sponsors:
Teva Pharmaceuticals
Neurocrine Biosciences
Genentech
uniQure
Spark
Wave
Prilenia
Griffin
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