Bloopy the Alien Learns about Huntington's Disease: by 12-year-old Emma Wajswasser
- katrina4384
- Dec 22, 2024
- 2 min read
December 11, 2024 — Toronto, Ontario, Canada
Most people have never heard of Huntington’s disease. This lack of awareness means people living with this rare condition are often misunderstood and mistreated, especially in the medical system. Bloopy the Alien Learns about Huntington’s Disease teaches kids and adults alike about the symptoms of the disease and offers practical solutions for how to interact with people living with this condition.
There is no better way to answer questions about a rare disease, like Huntington’s, than through the imaginative lens of a curious alien and loving granddaughter. What a joy it is to read this sweet and educational story about universal acceptance.
Laura Will, MSN, rare mom and author in Positively Rare
Huntington’s disease (HD) is a degenerative neurological condition that causes cognitive impairment, uncontrolled movements, and emotional issues. Carriers of the gene will develop the disease—which is said to be a combination of Parkinson’s, Alzheimer’s, and ALS—but don’t know when symptoms will appear.
Emma Wajswasser is a 12-year-old student from Toronto whose grandpa is living with HD. She wrote this book because she wanted to educate kids and adults about the disease and how to interact with people in a kind and compassionate way. This is not just a book about Huntington’s disease; it is a book about having empathy and understanding for any older adults in our lives.
The book is published by Lemonade Press, a social purpose publisher that works with underrepresented medical communities to create specialized books about medical conditions and rare diseases.
When Bloopy the alien comes to Earth to learn more about humans, he meets Emma and her family. He quickly wonders why Emma’s grandpa is behaving so differently. In this heartwarming story, Emma teaches Bloopy about having empathy and understanding for people living with a rare disease.
Available on Amazon worldwide – December 11, 2024
Bloopy the Alien Learns about Huntington's Disease: Wajswasser, Emma, Paterson, Erin: 9781777917968: Amazon.com: Books
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