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Who am I? PT. 1
Figuring out who you are and who you want to be is difficult for any kid. Are you a person who plays sports? Do you enjoy art, music,...
katrina4384
Nov 10, 20243 min read
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katie8288
Nov 8, 20240 min read
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Help 4 HD's Help 4 the Holidays is OPEN
Apply here: https://www.help4hd.org/events-1/november-help-4-the-holiday-food-program-1-1/form
katrina4384
Nov 3, 20241 min read
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Navigating Grief with a Side of Dark Humor
Let me tell you, grief is a wild ride—a bizarre mix of emotions that can leave you feeling as if you're constantly stuck in a bad movie,...
katrina4384
Oct 27, 20242 min read
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What I've learned - an essay by Sharon Quigley
For so long my life was bound to someone else. When I married, I vowed to love another “in sickness and in health”. What they don’t tell...
katrina4384
Oct 20, 20243 min read
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Myth Buster: Do People with Huntington's Disease Have a Lower Risk of Cancer?
Help 4 HD HIPE Virtual ~ Myth or Fact Does having HD decrease your risk of cancer? The Claim: People with Huntington's disease have a...
katie8288
Oct 13, 20242 min read
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Myth or Fact: More men than women have HD
This is a persistent myth that has been circulating for decades. However, the truth is that HD affects men and women equally. The...
katie8288
Oct 6, 20241 min read
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Myth or Fact: Most people die from Huntington's disease because of starvation.
Myth or Fact: Most people die from Huntington's disease because of starvation. While starvation can be a factor in some cases, it's not...
katie8288
Sep 29, 20242 min read
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katie8288
Sep 26, 20240 min read
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Myth or Fact: Alcohol Makes Chorea Worse in Huntington's Disease
The question of whether alcohol makes chorea worse is a complex one, and the answer isn't as straightforward as we might hope. The HIPE...
katie8288
Sep 22, 20242 min read
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When Hope Expires and Belief Steps In
Hope, in its essence, is a passive emotion. It's the expectation that someone else - researchers, doctors, or even fate - will make a...
katie8288
Sep 14, 20243 min read
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Myth or Fact: People with Psychiatric Symptoms in Huntington's Disease Won't Have Involuntary Movement
One myth that recently caught our attention is the belief that individuals with psychiatric symptoms are less likely to experience chorea...
katie8288
Sep 8, 20242 min read
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An Update on Generation HD2 Enrollment and Study Status
5 September 2024 Update on GENERATION HD2 enrollment and study status Dear Huntington’s patient community leaders, We appreciate your...
katrina4384
Sep 6, 20242 min read
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Prilenia filed a European Marketing Authorization Application (MAA) with the EMA. What's next for the United States?
To learn more about this news and Pridopidine, please read our press release here: Prilenia’s Pridopidine for Huntington’s Disease...
katrina4384
Sep 3, 20241 min read
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Navigating Outbursts and Legal Trouble in Huntington's DiseaseÂ
Living with Huntington's Disease (HD) comes with a unique set of challenges, not just for those diagnosed but also for their families and...
katie8288
Aug 31, 20244 min read
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Navigating the Complexities of Huntington’s Disease: Insights from Dr. Sung on the Latest Clinical Trials
By Katie Jackson As someone who has dedicated almost two decades now to Huntington's Disease (HD) advocacy, I’ve seen the HD landscape...
katie8288
Aug 24, 20243 min read
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Understanding CAG Variability and Its Impact on the HD Journey
By Katie Jackson, President and CEO of Help 4 HD International When I first began advocating for the Huntington's disease (HD)...
katie8288
Aug 17, 20243 min read
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Understanding the Power of HD Community: A Conversation with Help 4 HD International and HDSA
Welcome to our latest blog post where we dive into an exciting initiative for the Huntington’s disease (HD) community—Power HD. Recently,...
katie8288
Aug 10, 20242 min read
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Interim data from the ongoing HD Gene TRX-1 and 2 clinical trials.
• A significant, dose-dependent, slowing in disease progression measured by cUHDRS was observed through 24 months in patients receiving...
katie8288
Jul 9, 20241 min read
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The "Jim-i-sphere" Concept
One day, I was sitting with my mom at the table. She expressed deep concern that my sweet daddy, Jim, was "'backsliding' into his old...
katrina4384
Jul 8, 20243 min read
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