Michael Sabado
Help 4 HD Opens Relief Fund for COVID-19 HD Patient Assistance
Katie Jackson: Hello everyone and welcome back to Help 4HD TV. Today we are going to be talking about our relief fund. We are getting...
Search
katie8288
- Mar 27, 2020
- 2 min
Help 4 HD TV - Episode 1
Katie Jackson: Hi everyone, and welcome to the very first episode of Help 4 HD TV. We all know with COVID 19 that we are feeling even...
73 views0 comments
Michael Sabado
- Mar 17, 2020
- 1 min
Changes at Help 4 HD due to COVID-19 (coronavirus)
A message from Help 4 HD International's CEO, Katie Jackson. This message will be transcribed and available here shortly.
172 views0 comments
Michael Sabado
- Mar 10, 2020
- 1 min
HIPE Day Sacramento, Postponed
March 10, 2020 To Our HD Community, It is with great regret and disappointment I write you to announce that Help 4 HD International HIPE,...
16 views0 comments
Michael Sabado
- Dec 30, 2019
- 3 min
WAVE PRECISION-HD2 Community Update
December 30, 2019 Dear global HD community, Today we announced encouraging topline results from PRECISION-HD2, our ongoing Phase 1b/2a...
385 views0 comments
Michael Sabado
- Dec 3, 2019
- 1 min
Help 4 HD and Meg's Fight 4 a Cure Holiday JHD Program
Apply for this program here: https://www.surveymonkey.com/r/JHDHoliday
11 views0 comments
Michael Sabado
- Nov 14, 2019
- 3 min
Huntington Study Group Announces Initiation of Phase III Clinical Study of Valbenazine
For Immediate Release: November 14, 2019 Huntington Study Group Huntington Study Group Announces Initiation of Phase III Clinical Study...
19 views0 comments
Michael Sabado
- Oct 17, 2019
- 2 min
A Family Story
When Chrissy Land tested positive for Huntington’s disease over two decades ago, she had her entire life ahead of her. She was living in...
354 views0 comments
Michael Sabado
- Oct 16, 2019
- 2 min
Update on the Phase III GENERATION HD1 study
14 October 2019 Update on the Phase III GENERATION HD1 study Dear global HD patient community, Today we are pleased to announce that we...
54 views0 comments
Michael Sabado
- Aug 21, 2019
- 1 min
New JHD Research Published In American Academy of Neurology Journal
Two new studies were published in Neurology ®, the official journal of the American Academy of Neurology.
244 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 4 min
IACP Conference a Huge Success
A shocking video that went viral in September spurred the Huntington’s Disease community into action. The ten-minute video showed a young...
35 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Help 4 HD International Hosts Inaugural JHD Kids Walk
“Several years ago Jacey Mukka reached out to me to ask me if I could save her little sister, Karli,” says Dr. Jan Nolta, researcher at...
49 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 8 min
The Amazing, Astounding, Awesome, Super Hero Cameron Brown
Bright brown eyes and a big, engaging smile belie the fact that Cameron Brown, 13, struggles daily with the pain and suffering of...
25 views1 comment
Sharon McClellan Thomason
- Jun 3, 2019
- 7 min
Haunted by Ghosts of Huntington’s
Huntington’s disease has a reputation for being a “rare” disease. Statistics say that only about 30,000 people in the United States are...
60 views1 comment
Sharon McClellan Thomason
- Jun 3, 2019
- 6 min
Guidelines for Genetic Testing Aren’t Working
As anyone with any knowledge or affiliation with Huntington’s disease knows, predictive testing to determine if one has the genetic...
33 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
New Genetic Test Offers Hope
Folks in the Huntington’s disease community are quite accustomed to the bad news that a genetic test can bring; now there’s a genetic...
26 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 3 min
Through the Eyes of an 11-year-old Child Living at Risk
It seems like I’m the only one in my life that lives with my grandmother and grandfather. They are great and all, probably better than...
6 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 11 min
Sacramento Symposium Brings Hope
“The symposium in Sacramento was the best HD [Huntington’s disease] gathering we have ever attended,” Bob Lohse wrote for his wife, Gail,...
12 views0 comments
Sharon McClellan Thomason
- Jun 3, 2019
- 5 min
Why Mental Illnesses Should Be Treated as Seriously as Physical Illnesses
A day in the life of someone who suffers from Huntington’s disease: July 22, 2016 My first trip to the emergency room for anxiety. *Alarm...
8 views0 comments