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Help 4 HD International Exhibits and Presents at the Crisis Intervention Team International (CIT)
Help 4 HD International's LEEP program began in 2014 when Help 4 HD International exhibited at its first International Association of...
katie8288
Jul 28, 20239 min read
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Please stop saying that about HD...
1. So, this isn't quite on topic, but the one thing I'm tired of seeing..... I'm THRILLED Hollywood is recognizing HD, but my issue is...
katrina4384
Jul 16, 20232 min read
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Testing, what to do first; words from the community.
We asked our social media followers, 'What is one thing you should do before getting tested?' the discussions were great! One of the very...
katrina4384
Jul 6, 20234 min read
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We Asked, and the Community Answered.
We Asked, and the community Answered. When friends or the community ask how they can help, are you always at a loss for ideas? Let's...
katrina4384
Jun 28, 20233 min read
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PTC Therapeutics Shares Positive Interim Data from PIVOT-HD Clinical Trial
PTC Therapeutics Shares Positive Interim Data from PIVOT-HD Clinical Trial in Huntington's Disease Patients June 21, 2023 PDF Version -...
katie8288
Jun 21, 20235 min read
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uniQure Announces Update on U.S. Phase I/II Clinical Trial of AMT-130 Gene Therapy
Dear Huntington’s Disease Patient Organization Leaders, We are writing to let you know that this morning uniQure issued a press release...
katie8288
Jun 21, 20232 min read
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Eyes, Ears, Nose, and Paws help Olivia, who lives with JoHD, find her forever partner
Olivia Eiger is a social teen, who recently celebrated her 17th birthday and is planning to commemorate both her birthday and going into...
katie8288
Jun 8, 20232 min read
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HD Awareness Month 2023, Some Patient/Family Response.
What do you wish healthcare workers were more mindful of with HD patients? Community Response: · I wish they were educated about...
katie8288
May 26, 20238 min read
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Help 4 HD is featured on Movement Disorder Policy Coalition
https://www.movementdisorderspolicy.org/news/2023/5/11/help-4-hd
katie8288
May 23, 20231 min read
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katie8288
May 16, 20230 min read
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An HD Awareness Message from Charles Fisher
Hello, my name is Charles Fisher. This is my story about Huntington's disease. I got made fun of when I was younger, and I still get...
katie8288
May 8, 20231 min read
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What has your family endured due to a lack of awareness about HD? The community responds.
• We planned a friend trip to Vegas after my husband’s diagnosis. We all sat down at a poker table to play. The whole table was just our...
katie8288
May 1, 20236 min read
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HD community letter from Prilenia about the topline results from the PROOF-HD clinical trial.
April 25, 2023 Dear Huntington’s Disease Community, We are reaching out to provide an important update about the topline results from our...
katie8288
Apr 25, 20234 min read
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I am an adult living with JoHD—an interview with Ashley.
I am an adult living with JoHD—an interview with Ashley. We want to thank Ashely for doing this short interview with Help 4 HD. It helped...
katie8288
Apr 17, 20234 min read
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katie8288
Apr 4, 20230 min read
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katie8288
Mar 28, 20230 min read
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katie8288
Mar 21, 20230 min read
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Community Questions About AUSTEDO XR
Community Questions that Help 4 HD Received After our Virtual HIPE on February 25th AUSTEDO XR The answers to these questions were found...
katrina4384
Mar 13, 20231 min read
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HIPE Virtual 2023, three community members' questions were addressed.
Question: Would putting your loved one on female hormone therapy, like low- estrin, bring down sexual aggression in a male living with...
katie8288
Mar 2, 20236 min read
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Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO®...
katie8288
Feb 22, 20237 min read
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