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katie8288
Apr 25, 20234 min read
HD community letter from Prilenia about the topline results from the PROOF-HD clinical trial.
April 25, 2023 Dear Huntington’s Disease Community, We are reaching out to provide an important update about the topline results from our...
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katie8288
Apr 17, 20234 min read
I am an adult living with JoHD—an interview with Ashley.
I am an adult living with JoHD—an interview with Ashley. We want to thank Ashely for doing this short interview with Help 4 HD. It helped...
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katie8288
Apr 4, 20230 min read
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katie8288
Mar 28, 20230 min read
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katrina4384
Mar 13, 20231 min read
Community Questions About AUSTEDO XR
Community Questions that Help 4 HD Received After our Virtual HIPE on February 25th AUSTEDO XR The answers to these questions were found...
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katie8288
Mar 2, 20236 min read
HIPE Virtual 2023, three community members' questions were addressed.
Question: Would putting your loved one on female hormone therapy, like low- estrin, bring down sexual aggression in a male living with...
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katie8288
Feb 22, 20237 min read
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets
Teva Announces FDA Approval of AUSTEDO® XR (deutetrabenazine) Extended-Release Tablets, a New Once-Daily Formulation of AUSTEDO®...
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katrina4384
Feb 13, 20233 min read
Caregiver Support - Join us on Tuesdays!
Help 4 HD International Caregiver Support Group Hello, I am Katie Jackson, CEO of Help 4 HD International. Our organization is dedicated...
314 views1 comment

katie8288
Feb 3, 20231 min read
What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s
What we don’t need to prove but need to do in multidisciplinary treatment and care in Huntington’s disease: a position paper
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katrina4384
Nov 29, 20220 min read
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katrina4384
Nov 8, 20220 min read
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katrina4384
Oct 2, 20222 min read
Community Conversation - Do you feel like hospice is a service that is helpful for HD/JHD families?
Community responses: 1. I feel like Hospice should be the very last option at the very end of life. In our poor county, the only benefit...
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katrina4384
Sep 20, 20224 min read
GENERATION HD2, a new Phase II clinical study
September 18th, 2022 Dear Huntington’s patient community leaders, Following your request to receive timely updates about our Huntington’s...
193 views0 comments


katrina4384
Sep 20, 20229 min read
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial
Wave Life Sciences Announces Positive Update from Phase 1b/2a SELECT-HD Trial with Initial Results Indicating Allele-Selective Target...
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