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OUR STORY
About Our Foundation
Incorporated and tax exempt in 2013, Help 4 HD's mission is to educate the world about Huntington’s disease (HD) and Juvenile Huntington's disease (JHD) through its multimedia communications platform. Through live events, Help 4 HD Radio, Help 4 JHD Radio, symposia, conferences, publications, and support groups, Help 4 HD brings education, information, and resources to the global community, partnering with medical professionals, researchers, institutions and industry for the most current and credible information and resources available.
WHAT IS HUNTINGTON’S DISEASE?
Huntington’s disease (HD gene found in 1993) is an inherited and ultimately fatal brain disorder that affects control of movement, thought, and behavior. Every child of an individual with HD has a 50/50 chance of inheriting the mutated gene that causes HD. More than 30,000 Americans have been diagnosed with HD, and more than 250,000 others are at risk.
Recent 2013 updated statistics from the National Institute of Health estimate that more than 30,000 people in the United States have Huntington's Disease.
NEWS
UPCOMING EVENTS
Fri, Jun 21Valleywood Golf & EventsJun 21, 2024, 8:00 AM CDTValleywood Golf & Events, 4851 McAndrews Rd, Apple Valley, MN 55124, USAJoin us for Celebrating D’s Golf Event on June 21, 2024, raising funds to support our HD families through Help 4 HD’s Family Relief Fund.
Fri, Jun 21Central Park PavilionJun 21, 2024, 10:30 AM CDTCentral Park Pavilion , 1497 Central Pkwy, Eagan, MN 55121, USAJoin us for Celebrating D’s 5K Event on June 21, 2024, raising funds to support our HD families through Help 4 HD’s Family Relief Fund.
Sat, Aug 24ChicagoAug 24, 2024, 9:00 AM – 9:30 PMChicago, 5615 N Cumberland Ave, Chicago, IL 60631, USA
Sat, Aug 24ChicagoAug 24, 2024, 9:00 AM – 9:30 PMChicago, 5615 N Cumberland Ave, Chicago, IL 60631, USA
Fri, Oct 04ArlingtonOct 04, 2024, 1:00 PM – Oct 05, 2024, 9:30 PMArlington, 2800 S Potomac Ave, Arlington, VA 22202, USA
Fri, Oct 04ArlingtonOct 04, 2024, 1:00 PM – Oct 05, 2024, 7:30 PMArlington, 2800 S Potomac Ave, Arlington, VA 22202, USAJoin us in Arlington on October 4th and 5th for Help 4 HD International Symposium, 2024. We will be hosting a Welcome Reception on October 4th. We will be hosting a full education series with breakout sessions followed by an evening celebration on October 5th. Hope to see you there!
Date and time is TBDwww.help4hd.orgDate and time is TBDwww.help4hd.org
